After 4 years and two months with this horrible disease I’m still just about transferring with my walker to wheelchair and getting into bed by holding on to things. But these aren’t sustainable and I’m scared stiff.
Council people are coming tomorrow afternoon to measure up for ceiling hoists but no guarantee that that they can do them in our flat. I certainly hope so. We’ve got a Return platform for if I can weight bare but not walk. Not used yet and it’ll be hard for Steve and for me.
My SLT is coming tomorrow morning about my problems eating and swallowing. She must not know that I’ve got a PEG booked in for in two weeks.
Fairfield Hospital Orthotic Department have been in touch to confirm that my shoes are ready. Appointment on 3rd to fit.
I’m working hard breath stacking to keep my lungs as strong as I can but I expect to come home from having my PEG with breathing support (a NIV).
My catheter is eventually being sorted out on this Wednesday morning. I hope that the new one doesn’t leak like the two others. I’ve had to wear incontinence pants which is awful.
Rant over. I hope that my post hasn’t put anybody on a downer. Lynne xx
Council people are coming tomorrow afternoon to measure up for ceiling hoists but no guarantee that that they can do them in our flat. I certainly hope so. We’ve got a Return platform for if I can weight bare but not walk. Not used yet and it’ll be hard for Steve and for me.
My SLT is coming tomorrow morning about my problems eating and swallowing. She must not know that I’ve got a PEG booked in for in two weeks.
Fairfield Hospital Orthotic Department have been in touch to confirm that my shoes are ready. Appointment on 3rd to fit.
I’m working hard breath stacking to keep my lungs as strong as I can but I expect to come home from having my PEG with breathing support (a NIV).
My catheter is eventually being sorted out on this Wednesday morning. I hope that the new one doesn’t leak like the two others. I’ve had to wear incontinence pants which is awful.
Rant over. I hope that my post hasn’t put anybody on a downer. Lynne xx
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