Clinic appointment upsetting

[Rosemary6NT]

TinyLady I’m glad you had a positive outcome, not before time by the sound of things. Xx

[matthew55]

Personally I love a good ramble, even if I fall over a lot. 🍁😘😁👀xx

[LindaB]

TinyLady glad to hear you're getting support now...it's understandable you'll feel overwhelmed. Whatever anyone says ultimately you choose the support you're prepared to accept....you're your own expert. Take care🤗😘

[denise]

At last things sound so much better. Let's hope things improve for you. Xxxx

[shelly21]

TinyLady I'm so sorry all this is happening but maybe things would move quicker if you had a stay in the hospice. I really understand the wanting to be at home but I worry re you being alone re your partner working and children at school.

At the hospice you could just take time to rest and be cared for until you mentally feel stronger. Then hopefully the care package could be implemented.

X

[Betty May]

Personally I love a good ramble, even if I fall over a lot. 🍁😘😁👀xx

I've no idea how to access more smileys than the paltry amount visible but I wanted a good ROTFL smiley for that one, it did make me laugh! (And no pun intended!)

TinyLady Hi, it's good to read that both the physio and the doctor were pro-active and helpful - and genuinely interested in YOU. Did the physio suggest any kind of portable aids that might help in the short-term or is that not an option? (Feel free not to answer if you don't want to).

It's a big decision to make - perhaps you could talk it over with them again once you've had time to process the idea as I'm sure you must have more questions.

Best wishes xx

[TinyLady]

Betty May - I know matthew55 made me laugh with that comment. Love this forum and the fact we don't need to take ourselves too seriously!

I have agreed to go in. I'm aware that I am not safe, I need to find out what is what - I've had this a while and so far just been getting on with it oblivious, so if this speeds everything up, then I need to accept the help. I'm so tired of struggling.

The physio looked at a few options, but with a combination of one arm and two legs not cooperating, plus fatigue after a few steps, I think the conclusion was not to push it. But once in there maybe we can tweak things and come up with a plan.

I keep nearly falling backwards which the worst thing, rather than tripping forwards. Very odd.

[Ellie]

TinyLady When are you going in?

I keep nearly falling backwards which the worst thing, rather than tripping forwards. Very odd.

Falling backwards is usually how we fall, rather than forward, Drama Queens and Kings that we are 🙄😍😍😘

[TinyLady]

Ellie - as soon as they have a bed. They said hopefully early next week. Shame because my birthday is next week and it would have been nice to have partied all night 🤣

Oh, interesting it is fairly standard to fall backwards! I thought I was strange and being a bit dramatic. Sounds like there is maybe a good reason then... other than attention seeking 😉

[Ellie]

Sounds like there is maybe a good reason then...

Yep, it's called retropulsion and is caused by damage to nerves. xx

[Tabbycat]

TinyLady Glad positive things are happening for you. We have to make many difficult decisions on this MND journey, many we would rather not have to make. Having a supportive & experienced team will help you when making these decision. Hopefully going in for a stay will give you a well earned rest, physically and emotionally, both of which can be exhausting. Sending hugs 🤗

[TinyLady]

Ellie - oooh a word to Google! Thanks 🙂

Tabbycat - yes, I think the benefits outweigh the missing being at home and with my family. Plus the "brave face" will finally get a rest xx