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    Occupational therapist visit

    So impressed with our OT, she is arranging, grab rails in bathroom, hand rail for other side of stairs, perching stool, bath bench, and cutlery, offered my husband a riser/recliner chair but he decided to wait as he loves his sofa! She also mentioned the DFG for an extension, they are going to ring next week for an informal eligibility check, does anyone know what is the cut off income level to qualify if you have no savings? Thanks so much xx
    Carer for my husband who was diagnosed with ALS on 15.12.21.
    Trying to think of only today and tomorrow
    Alison ♥

    #2
    Well done you 👍😊😄❤️xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      Originally posted by Doggymama View Post
      So impressed with our OT
      A good OT is worth their weight in gold!!

      If your husband is happy in his sofa, great, and he knows he can get an RR armchair should the need arise.

      I don't know about DFG means testing, it's probably explained on your Council's website but I'm sure there are experts in the process on here who'll answer you soon 👍👍😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      Comment


        #4
        Doggymama glad to hear good things about your OT.
        Where I live eligibility for DFG are based on savings only not income. As Ellie says best to check on your local council website as they may vary from place to place.
        Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

        Comment


          #5
          Originally posted by Doggymama View Post
          So impressed with our OT, she is arranging, grab rails in bathroom, hand rail for other side of stairs, perching stool, bath bench, and cutlery, offered my husband a riser/recliner chair but he decided to wait as he loves his sofa! She also mentioned the DFG for an extension, they are going to ring next week for an informal eligibility check, does anyone know what is the cut off income level to qualify if you have no savings? Thanks so much xx
          Doggymama - Our OT is brilliant too. Glad you’ve had a good experience with yours. I believe the lower capital limit - i.e the level of savings, investments, salary etc below which you will not have to pay anything for your care - is currently £14250. The upper capital limit is £23,250. Anything above this and you will not qualify for financial support.

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            #6
            Thank you for your replies, she did say that we would hear during the check what we would need to do to qualify. I would need to ask for a pay cut lol x
            Carer for my husband who was diagnosed with ALS on 15.12.21.
            Trying to think of only today and tomorrow
            Alison ♥

            Comment


              #7
              Originally posted by Doggymama View Post
              Thank you for your replies, she did say that we would hear during the check what we would need to do to qualify. I would need to ask for a pay cut lol x
              Doggymama - should have added the financial assessment in my case was based on my wife only and not me. I believe this to be standard practice.

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                #8
                Stubot, Doggymama

                In the area I live (Norfolk) the financial criteria for DFG and Care packages are assessed differently.
                For DFG it is based on savings above £23,250 and both adults (in the household) savings are taken into account.
                For packages of care only the savings of the person receiving care are considered and the threshold is lower (around £10,000 I think).
                Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

                Comment


                  #9
                  Sorry I don't know how to do the tag thing, but Tabbycat do you know what income level you need to be below in order to qualify for the DFG? Thanks so much, I realise this may differ between councils but will hopefully give me some idea if we are in with a chance of qualifying, otherwise I will have to add to our mortgage, luckily it's nearly paid off but was so looking forward to not having a mortgage after all these years!
                  xx
                  Carer for my husband who was diagnosed with ALS on 15.12.21.
                  Trying to think of only today and tomorrow
                  Alison ♥

                  Comment


                    #10
                    Originally posted by Tabbycat View Post
                    Stubot, Doggymama

                    In the area I live (Norfolk) the financial criteria for DFG and Care packages are assessed differently.
                    For DFG it is based on savings above £23,250 and both adults (in the household) savings are taken into account.
                    For packages of care only the savings of the person receiving care are considered and the threshold is lower (around £10,000 I think).
                    Ah yes. Sorry. You’re right Tabbycat - same here. We didn’t qualify for DFG so had to fund our build and modification costs ourselves. Still benefitted from VAT exemption for some of that.

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                      #11
                      I have been recently told by our local hospice that my husband can have carers and this will be paid for by CCG (Clinical Commissioning Group).We don’t need carers at present (poss will do in the near future) but was not aware of that. My husband was referred to our local hospice for possible day care but they are not offering this now due to covid. So we don’t have input from them just a phone call now and then
                      Is anyone else aware of this.
                      Last edited by Piglet; 28 January 2022, 18:26.

                      Comment


                        #12
                        Piglet that would be funding through NHS Continuing Health Care (CHC) which is awarded for complex health needs, there are 12 categories that need to be considered.
                        For more details see:

                        https://www.nhs.uk/conditions/social...ng-healthcare/

                        It's not usually given if someone needs help with, for example, washing & dressing or transferring from bed to chair. It will be for more intense nursing care needs such as management of airways such as NIV and nutrition such as a PEG.
                        Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

                        Comment


                          #13
                          Tabbycat I thought that. My husband is in his 5th year with MND he is just about mobile. Used NIV at night. Some swallowing difficulties. Requires lifting on transfers. Recently got hospital bed. So I’m confused with what the Co-ordinator meant when she said care would be funded as I know he wouldn’t qualify for CHC. As his needs though a concern are not complex as yet. Thanks for your reply.x

                          Comment


                            #14
                            Piglet it's worth having the CHC checklist completed and this should trigger the full CHC assessment. People living with a diagnosis of MND do often meet the eligibility for fully funded NHS Continuing Healthcare.👍🏻😉
                            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                            Comment


                              #15
                              Doggymama No I don't know what income level you need to be below to qualify, sorry.

                              Stubot Yes same here, we don't qualify for DFG either so will have to self fund. I know a good accountant so they will assist with the VAT exemption bit. I will be investing my (ill-health retirement) pension lump sum into our alterations!
                              Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

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