Announcement

Collapse
No announcement yet.

Breathing issue reported to Wythenshaw

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Breathing issue reported to Wythenshaw

    Iโ€™m going in for a sleep study on Tuesday to see if a NIV is appropriate and having the required covid test tomorrow. Lynne xx
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    #2
    All the best Lynne xx
    Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

    Comment


      #3
      Good luck from me.๐Ÿ€๐Ÿคž๐Ÿ˜„๐Ÿ˜˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

      Comment


        #4
        Lynne K All the best for Tuesday Lynne, hope you get good sleep. ๐Ÿคž๐Ÿคž๐Ÿ˜˜
        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
        .
        โ€‹

        Comment


          #5
          all the best Lynne x

          Comment


            #6
            Thanks Ellie, Shrew, Mathew and Heather xx
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

            Comment


              #7
              Originally posted by Lynne K View Post
              Iโ€™m going in for a sleep study on Tuesday to see if a NIV is appropriate and having the required covid test tomorrow. Lynne xx
              Hope that goes well next week. ๐Ÿ‘๐Ÿป๐Ÿ˜˜๐Ÿ˜˜
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

              Comment


                #8
                Hope that goes well Lynne xxx

                Comment


                  #9
                  Originally posted by Music man's wife View Post
                  Hope that goes well Lynne xxx
                  Thanks xx
                  ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                  I'm staying positive and taking each day as it comes.

                  Comment


                    #10
                    Hope all goes well

                    Comment


                      #11
                      Patw thanks xx
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                      I'm staying positive and taking each day as it comes.

                      Comment


                        #12
                        Lynne K best wishes from me too xx
                        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

                        Comment


                          #13
                          Rosemary6NT thanks Rosemary. Went for PCR covid test and given something to wear on my wrist that attaches to a finger to wear overnight tonight and tomorrow night then take with me on Tuesday. Theyโ€™re ringing Monday sometime about admittance time for Tuesday xx
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

                          Comment


                            #14
                            Thats the oximetry test lynne. It records your co2 etc whilst sleeping. Good luck x
                            Diagnosed May 2021 bulbar onset als.

                            Comment


                              #15
                              Originally posted by shelly21 View Post
                              Thats the oximetry test lynne. It records your co2 etc whilst sleeping. Good luck x
                              Thanks Shelley xx
                              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                              I'm staying positive and taking each day as it comes.

                              Comment

                              Working...
                              X
                              😀
                              🥰
                              🤢
                              😎
                              😡
                              👍
                              👎