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Breathing issue reported to Wythenshaw

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    Breathing issue reported to Wythenshaw

    I’m going in for a sleep study on Tuesday to see if a NIV is appropriate and having the required covid test tomorrow. Lynne xx
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    #2
    All the best Lynne xx
    Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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      #3
      Good luck from me.πŸ€πŸ€žπŸ˜„πŸ˜˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        Lynne K All the best for Tuesday Lynne, hope you get good sleep. 🀞🀞😘
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          #5
          all the best Lynne x

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            #6
            Thanks Ellie, Shrew, Mathew and Heather xx
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

            Comment


              #7
              Originally posted by Lynne K View Post
              I’m going in for a sleep study on Tuesday to see if a NIV is appropriate and having the required covid test tomorrow. Lynne xx
              Hope that goes well next week. πŸ‘πŸ»πŸ˜˜πŸ˜˜
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                #8
                Hope that goes well Lynne xxx

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                  #9
                  Originally posted by Music man's wife View Post
                  Hope that goes well Lynne xxx
                  Thanks xx
                  ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                  I'm staying positive and taking each day as it comes.

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                    #10
                    Hope all goes well

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                      #11
                      Patw thanks xx
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                      I'm staying positive and taking each day as it comes.

                      Comment


                        #12
                        Lynne K best wishes from me too xx
                        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                          #13
                          Rosemary6NT thanks Rosemary. Went for PCR covid test and given something to wear on my wrist that attaches to a finger to wear overnight tonight and tomorrow night then take with me on Tuesday. They’re ringing Monday sometime about admittance time for Tuesday xx
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

                          Comment


                            #14
                            Thats the oximetry test lynne. It records your co2 etc whilst sleeping. Good luck x
                            Diagnosed May 2021 bulbar onset als.

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                              #15
                              Originally posted by shelly21 View Post
                              Thats the oximetry test lynne. It records your co2 etc whilst sleeping. Good luck x
                              Thanks Shelley xx
                              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                              I'm staying positive and taking each day as it comes.

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