Liquid Riluzole still not arrived and what a battle I have every time to swallow them. I don’t know what my GP and/or pharmacy are playing at xx
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Would it help to take the tablet in a teaspoon of low fat/fat free soya dessert, jam, stewed fruit etc. for the few days until the liquid arrives? At least I hope it will just be a few days 🤞🤞 xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Originally posted by Ellie View PostWould it help to take the tablet in a teaspoon of low fat/fat free soya dessert, jam, stewed fruit etc. for the few days until the liquid arrives? At least I hope it will just be a few days 🤞🤞 xx
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Originally posted by LindaB View PostI think I read in a different thread it's ok to crush Riluzole...
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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I managed the Riluzole with just water last night and this morning. I hope that the same occurs tonight and tomorrow morning. I’m going to message MyGP tomorrow morning at 8am to chase the liquid Riluzole. Fingers crossed xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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I do have Teglutik (Riluzole liquid) but all tablet medications get crushed together, mixed with water and delivered through my PEG. Easy. Recommended by Consultant Nurse.Diagnosed October 2020 - See my blog at https://www.myneurodiary.com
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Originally posted by Stonehengeman View PostI crush my riluzole and add it to my morning porridge.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Stonehengeman Thank you kind sir, happy to help 👍👍 (plus, I have to something other than binge watch Netflix 😉) 💖Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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