Liquid Riluzole

[John D]

I take tablets inc Riluzole with porridge in the morning and pudding in the evening.

[Piglet]

You could be a professor with all your knowledge🧑🎓🧠😀

[Ellie]

Thanks Piglet

If you don’t mind me asking where you in the medical profession.

No, I just learned a lot in my 15 years dealing with all those medical professionals and through my own experiences.😏😘

[Piglet]

Ellie you are amazing and so very supportive and knowledgeable. If you don’t mind me asking where you in the medical profession.xx

[Ellie]

Stonehengeman Thank you kind sir, happy to help 👍👍 (plus, I have to something other than binge watch Netflix 😉) 💖

[Stonehengeman]

Thank you Ellie. I am amazed that you can add so many comments to so many "members" when it all has to be done by eye-gazing. I appreciate that you cannot do much other than read the computer and respond to it. As I said you are amazing as you have suffered over 14 years.

[Ellie]

I crush my riluzole and add it to my morning porridge.

As long as your porridge isn't made with cream... 😏👍 xx

[PeterPan]

I do have Teglutik (Riluzole liquid) but all tablet medications get crushed together, mixed with water and delivered through my PEG. Easy. Recommended by Consultant Nurse.

[Stonehengeman]

I crush my riluzole and add it to my morning porridge. I told my neurologist and he said that was fine.

[Lynne K]

I managed the Riluzole with just water last night and this morning. I hope that the same occurs tonight and tomorrow morning. I’m going to message MyGP tomorrow morning at 8am to chase the liquid Riluzole. Fingers crossed xx

[Lynne K]

Yes, that's right. xx

Thanks Ellie, I’ll let Steve know xx

[Ellie]

I think I read in a different thread it's ok to crush Riluzole...

Yes, that's right. xx

[LindaB]

Lynne K I think I read in a different thread it's ok to crush Riluzole...if desperate🤔

[Lynne K]

Would it help to take the tablet in a teaspoon of low fat/fat free soya dessert, jam, stewed fruit etc. for the few days until the liquid arrives? At least I hope it will just be a few days 🤞🤞 xx

I took it last night with a couple of spoons of vegan yogurt. This morning I got it down eventually with just water and going to try that again tonight 10.30. Xx

[Ellie]

Would it help to take the tablet in a teaspoon of low fat/fat free soya dessert, jam, stewed fruit etc. for the few days until the liquid arrives? At least I hope it will just be a few days 🤞🤞 xx