Never a dull moment

[TinyLady]

So, yesterday I was admitted for a few weeks to the local hospice. It is lovely here and the staff are so kind. I was really overwhelmed and scared to come in.

Especially leaving my husband and children. But it seems the only way they can even start to catch up on managing (and identifying) my symptoms.

I just hope I escape soon and with support in place (and a few less bruises too 🤣) so I can enjoy myself a bit!

Has anyone else had a few weeks in their local hospice? Did it help speed things up?xx

[Ellie]

Has anyone else had a few weeks in their local hospice?

I've often been an inpatient at my hospice (symptom management, respite and sorting out new carers) and every time I was there was a very positive experience and, if anybody can get things hurried on, it's the hospice Social Worker, OT and Physiotherapist.

'Enjoy' your stay and take advantage of all the services offered 👍👍😘

[Piglet]

TinyLady glad the hospice has been arranged so soon. I hope all goes well for you whilst on respite with good support when you get home. As Ellie has said enjoy the rest and the care from the lovely staff xx

[TinyLady]

Ellie thank you for your reassurance. I seem to never get a chance to catch my breath at the moment. It's good to know this is support available when needed. They are being so kind and I feel so much safer. At home alone was not working out well!

I can't believe they even serve alcohol. Just a shame I'm not allowed my children to visit, only my husband 😢

[Ellie]

Just a shame I'm not allowed my children to visit, only my husband

My last respite I was allowed two nominated visitors from my household each day, who were tested before being allowed in to see me, so I was lucky enough to see both my kids and husband over the two week stay. xx

[LindaB]

TinyLady enjoy your stay...gives you breathing space to think, knowing you're well cared for.
Good news about alcohol 😉👍🏻😘

[richard]

I’m really pleased that you are being well looked after. I wish you well in recharging your batteries and getting some good rest and care. Sending a big HUG.

Richard

[Lynne K]

Glad that you’ve got good care in the hospice xx

[matthew55]

Sounds wonderful enjoy your holiday girl 🎈🎂😄🤗xx

[Rosemary6NT]

That sounds good TinyLady. Useful to have “time out”

[Heather R]

TinyLady so glad you're getting that help. Hope you can relax a bit and they help get things sorted for you xx

[TinyLady]

Thank you, I'm getting quite settled and we are hoping go get voice banking done while I am here too. Eaten so much food! Having it cut up and regularly provided with no effort is amazing. I've been crying happy tears 😆

[Rosemary6NT]

Thank you, I'm getting quite settled and we are hoping go get voice banking done while I am here too. Eaten so much food! Having it cut up and regularly provided with no effort is amazing. I've been crying happy tears 😆

Good to hear xx

[Betty May]

TinyLady I'm so glad it's working out for you at the hospice. My husband was only ever an out-patient at our local hospice but he went regularly every Thursday to spend a few hours there and it was always a good experience for him. Even just having access to a doctor, therapists, a hair dresser etc, not to mention the lovely nurses, was a good support. It was also a lot of peace of mind for me to know that he could be admitted as an in-patient to a familiar and caring place if anything happened to me as he was completely dependent on me for the most basic of needs.

I wonder if your husband would be allowed to take you out for a couple of hours somewhere in a manual wheelchair so that you could see your children?.... Just a thought.

Here's hoping that your home adaptations don't take too long but it's good that you are getting so well looked after in the meantime!

[TinyLady]

Betty May - I'm glad your husband got so much support from his hospice. I was apprehensive and on top of an already frantic few weeks thought it might just be too much. But they are good places to get a rest and more intensive assessment and support.

I did get pushed for a walk round the local park by hubby yesterday and met up with my daughters... but it was freezing! After a while I had to admit defeat and come back 🤣

Council emailed this morning and said I'm not eligible for funding for my adaptations... so stuck in a vicious circle for now. I think they want me in a bed in my living room with strip washes or something. God forbid at 46 I would want some kind of normality in my life... 😆