I just had poached eggs on toast and then did my teeth with Oralieve toothpaste to help with my very dry mouth. PEG this week and probably a NIV xx
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Lynne K you've got a lot on this week and I hope it all goes well. You'll still be able to enjoy your treats as I know other forum members do even with a peg. ππ»ππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Lynne K I thought you were still managing to eat safely π€ - toast can be tricky but you seem to eat it okay - are you thinking of not eating anything orally once you have a feeding tube? xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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shelly21 I have a very dry mouth so toast is now a no no. If I wasnβt intolerant to dairy it could be loaded with butter and go down easier. I wish. Iβm waiting on a call from Wythenshaw about going in tomorrow to have my breathing checked xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Steve told me before he went to the shops a few minutes ago that heβs doing me poached eggs on toast. Fingers crossed that I can cut it up and eat it xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Also Steveβs looking if Morrisons have any vegan pasties because Iβve been able to eat those cold recently as pastry and filling is quite soft. Fingers crossed that Iβll manage xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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I had the cold vegan pastie (as can pick it up and not have to use cutlery) with mayonnaise to help with the dry bits of pastry, then put had a vegan yogurt so a normal late lunch for me. Now to go do my teeth with Oralieve toothpaste for dry mouths and get Steve to spray the Glandosane synthetic saliva (sent by my SLT via my GP) in my mouth xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Lynne K There are plenty of vegan 'butters' out there for your toast which would help with its eating but, of course, the choice to continue eating meals, or not, is your choice to make.
Whatever you decide, make sure you're getting enough calories - don't want you fading away on us ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Hi Lynne K . You have such alot on this week, I really hope all goes well for you,
As an aside, I tried a diary free diet in the hope it would sort out my tummy problems and found lovely butters and soft vegan cheeses. Also coconut yogurts and vegan chocolate spread.
Hugs to you,
Love Debbie x
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Originally posted by Deb View PostHi Lynne K . You have such alot on this week, I really hope all goes well for you,
As an aside, I tried a diary free diet in the hope it would sort out my tummy problems and found lovely butters and soft vegan cheeses. Also coconut yogurts and vegan chocolate spread.
Hugs to you,
Love Debbie xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Originally posted by Ellie View PostLynne K There are plenty of vegan 'butters' out there for your toast which would help with its eating but, of course, the choice to continue eating meals, or not, is your choice to make.
Whatever you decide, make sure you're getting enough calories - don't want you fading away on us ππ
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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