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    #31
    I take the senna at bedtime, ~11pm, along with a softener (Docusate Sodium), and it works the next morning/mid-morning, for me anyway.

    I get really fed up and my appetite plummets if I'm constipated, so I can identify with what you said. It doesn't take much to mess up my bowel regimen, so I still find myself constipated every few months...

    Originally posted by DeeH View Post
    He asks me stuff, to ask the MND Posse
    Tell him we all say that prevention is better than the cure ๐Ÿ˜ so don't let it become chronic. xx
    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
    .
    โ€‹

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      #32
      Constipation has become a regular occurrence for me every 7/10 days or so. So far I have only needed Docusate softener which I take when I sense trouble brewing. It takes a day or 2 to work and then sometimes feels what I imagine giving birth is like
      Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

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      • I eat far less than previously being bed bound. I am mindful to maintain hydration. Consequently bowel movements are little, often and soft. I don't take laxatives at all.

        I have noted that when I think I have a covid infection, I do have movement problems. (But what do I know?)

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          #34
          I still havenโ€™t found the magic formula ๐Ÿ˜ซ. Itโ€™s been worse since starting on the morphine. Going to try chick pea curry tonight! ๐Ÿคช
          Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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            #35
            Rosemary6NT is it kill or cure Chick Pea Curry๐Ÿ˜…

            Hope you don't mind me asking is morphine for pain? (Feel free to ignore me) xx
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

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              #36
              Morphine is a double edged sword. Great for pain relief but bungs you up. ๐Ÿ˜“๐Ÿ˜๐Ÿค—๐Ÿ˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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                #37
                Originally posted by LindaB View Post
                Rosemary6NT is it kill or cure Chick Pea Curry๐Ÿ˜…

                Hope you don't mind me asking is morphine for pain? (Feel free to ignore me) xx
                Itโ€™s a low dose to help with breathing difficulties. Fortunately no pain.
                Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                  #38
                  Ellie
                  Thanks for the advice on time.

                  Spoke to Hubs, he is prepared to try it in the evenings

                  And will report back for information and the science.

                  As I said to the Family support lady, here's hoping for a "****" week as aposed to a "NO ****" week.

                  From personal experience it truely is agony, it was unfortunate that the black coffee stopped working.

                  And the curry Dal stopped working too.
                  Donna

                  Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

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                    #39
                    Originally posted by Rosemary6NT View Post

                    Itโ€™s a low dose to help with breathing difficulties. Fortunately no pain.
                    I imagine I'll be prescribed at some point ๐Ÿ‘๐Ÿป๐Ÿ˜
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

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                      #40
                      Originally posted by Rosemary6NT View Post
                      Going to try chick pea curry tonight! ๐Ÿคช
                      A few years ago, I put diluted hot sauce down my tube - it worked ๐Ÿ‘๐Ÿ‘ I was desperate, that was before Docusate came into my life...
                      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                      .
                      โ€‹

                      Comment


                        #41
                        Originally posted by John D View Post
                        ... sometimes feels what I imagine giving birth is like
                        Pushing on a contraction, yep, I guess you could say that ๐Ÿ˜
                        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                        .
                        โ€‹

                        Comment


                          #42
                          Ellie


                          Just looked at my comment. Interesting that in a thread about Bowels we can't use the four letter word for Poo.

                          Hopfully Poo is allowed.

                          Hot sauce sounds awesome
                          Donna

                          Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

                          Comment


                            #43
                            DeeH lol, I thought you hit the jackpot with the Kraken ๐Ÿ˜‚
                            Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                              #44
                              Originally posted by DeeH View Post
                              Hopfully Poo is allowed.
                              Easier to spell than fecaes, (no) feecas, (nope) feaces, (not that one either) faeces (yup, that one) ๐Ÿ˜

                              โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                              .
                              โ€‹

                              Comment


                                #45
                                Originally posted by Ellie View Post
                                Easier to spell than fecaes, (no) feecas, (nope) feaces, (not that one either) faeces (yup, that one) ๐Ÿ˜
                                When I was a nurse I woud put loose stools as I could never remember how to spell Diarrhoea,

                                which doesn't look right. When searched there was a few spellings.



                                Phoned the GP to ask for an official Bowel Regime, see what they come up with. To prevent instead of react.

                                Donna

                                Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

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