Rosemary6NT there have been no sightings of the Kraken and neither sausages or Maltesers
Which aren't the Dairy Milk kind from the shop.
Which aren't the Dairy Milk kind from the shop.
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Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020. -
I experience 'Turtle' poos - after much effort, sometimes something pokes its head out, then disappears back inside its shell. (I'm sure I'm not the only one π€, most infuriating...) xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Ellie, you are not aloneβ¦.Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Thanks, that's good to know πππOriginally posted by Rosemary6NT View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Ellie
Yes yes
Turtle poos, hubs has that too.
Thanks for adding to the poo vocabulary. Maybe a dictionary is needed.
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Ah, another Ninja π’ - π
Just don't mention the "S-word" πOriginally posted by DeeH View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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π©π©π©π©π©π©π©π©π©π©π©π©π©π©π©Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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LindaB Is that the first time you used that icon? ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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π€£π€£π€£Originally posted by LindaB View PostDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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π€£π€£π€£Originally posted by Ellie View PostDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Highly unlikely....sums up quite a lot ππππOriginally posted by Ellie View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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𧻠this is the closest my iPad comes to it- too posh for the s**t icon π
Speaking of which πDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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π πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
Comment