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    #16
    Hi Pink. Late hugs from me. Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

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      #17
      Hi Pink

      Glad you are feeling a bit better hope you continue to improve. We hope you get to the wedding, but watching it on live streaming will at least allow you to part of it.

      Sue

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        #18
        After months of organising equipment, carers etc im not well enough to go to my sons wedding tomorrow. Been in the hospice a week with a chest infection. The infection has gone but i still feel rubbish. The antibiotics were stopped yesterday but they are still taking its toll on my tummy. Fingers crosaed for the live feed x

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          #19
          That is a shame Pink.

          It's great that you'll be a virtual attendee with the live stream - wonderful use of technology!

          Wishing your son and his beloved a lovely day and many happy and healthy years to come. I seem to remember that it was him who got the ball rolling on your DIY SOS wet room?? You must be a proud mummy.

          Hope your tummy settles down and you get home soon.

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
          Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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            #20
            It brings a tears into my eyes reading this, Pink;

            So sorry you can't be there bit a live feed will be marvelous also. Continue to improve and get home soon.

            Hugs Terry
            TB once said that "The forum is still the best source for friendship and information."

            It will only remain so if new people post and keep us updated on things that work or don't work and tips.

            Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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              #21
              Sorry you are not well enough to go to your son's wedding. But I hope you will enjoy the live stream. Good to hear the chest infection has gone., and hoping you get better soon.
              Love Sheila

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                #22
                So sorry to hear this Pink, like Terry it brings a tear to my eye.

                Fingers and everything else crossed that the live stream is good for you to see and feel part of it.
                I know I said this before but the love you have for your boy and his for you will there at the wedding.

                Wishing your son and his soon to be wife every possible happiness in the future .
                Hoping you get home soon.
                Huge hugs
                Love Debbie x

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                  #23
                  Hi Pink,

                  I’m so sorry you are not feeling up to attend your son’s wedding. I do hope you can enjoy the experience via the video feed.

                  Wishing you get home safely and recover fully from this recent infection.

                  Barry
                  I’m going to do this even if it kills me!

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                    #24
                    Hello Pink,

                    I feel sad that you are not able to go to your son's wedding, but I am glad it will be live streamed so that you can watch it in comfort at the hospice.

                    I will keep my fingers crossed that everything will go smoothly tomorrow.

                    I hope you enjoy watching the wedding and I wish your son and his fiancée all the best for tomorrow. They will feel your love in their hearts during every moment of their wedding day.

                    Love and hugs,
                    Kayleigh xx

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                      #25
                      I’ve not been checking into the forum so just see these posts.
                      Pink, I am so sorry that you’re going to miss the wedding. You had got it all worked too. I hope you can get your posh frock on and toast your son and wife via FaceTime or whatever.
                      I hope you are soon safely home with your own carers on hand and are feeling better.
                      Lots of love and hugs xxx

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                        #26
                        so sorry ur not well enough to attend your Sons wedding Pink. You will enjoy watching the live stream. Get well soon x

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                          #27
                          Will be thinking of you and your family tomorrow.

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                            #28
                            Hi pink,
                            I’m all very new to this forum but having read your posts I feel so very sad for you. I hope you get to see the wedding using some form of technology. My heart is breaking for you and I will be thinking of you all tomorrow xxx
                            Kitty

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                              #29
                              Thanks for all your lovely comments and support. Ive just spoken to the dr and asked why i dont feel any better and he said its the mnd?

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                                #30
                                Hi Pink;

                                We're all hoping that the video link worked today.

                                Hope so, Terry
                                TB once said that "The forum is still the best source for friendship and information."

                                It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                                Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                                Comment

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