Update

[LindaB]

You always seem to find a solution matthew55 🤗😉

Yeah MND is crap🤬

[Ellie]

Friday is indeed the great day.

A mere 2 sleeps 👍👍

And don't forget you were told if this set up is too faffy for your hand function, they can give you eye gaze or other access methods. xx

[matthew55]

I use my profile bed to raise me to a sitting position, swing my legs and bingo. Friday is indeed the great day. 🎉👏😘😍xx

[Ellie]

MND sucks...

I can no longer get myself out of bed without mechanical help.

Do tell, what "mechanical help" gets you out of bed - again my imagination is transported to Wallace and Gromit's house 😉😍

Be careful with the dead weight of an arm: both of my arms are dead weight and, when dressing me, if one arm is left down by my side and the other arm is on my lap, I'll gradually be pulled over by the weight of the dangling arm like the Leaning Tower of Pisa 🥴 - I kid you not 😏

How long is a piece of string?

I hope it's elastic you have, not string.

I hope your week gets better by the arrival of your new tech - is it due on Friday? 😘😘

[Heather R]

Hard Matthew, keep soldiering on ! We have to keep saying goodbye to different parts of ourselves, but we're still all here for you! xx

[matthew55]

Right arm is now dead weight and I can no longer get myself out of bed without mechanical help. Still swallowing and left arm becoming weak. How long is a piece of string? 😉😁🤗😍xx