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Wythenshaw breathing assessment

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    #16
    Lynne K hopefully home today 🙏🙏💙😘
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #17
      Originally posted by Lynne K View Post
      Sleep study results: cO2 low so can’t give breathing machine or could push c02 too low. Oxygen mostly ok but periods during night when don’t breath or breath too shallow. So I’ll be staying in to try bi-pap machine and various masks. C-pap forces air in to keep throat open then hopefully support breathing. Fingers crossed xx
      How did it go Lynne?
      Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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        #18
        I posted my experience on my ‘Hospital Decisions’ new thread just now xx
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.
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