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One odd thing

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    One odd thing

    My right foot, practically dead, is still ticklish, and I mean in danger of kicking my carer. Who'd have thought it. πŸ€”πŸ˜πŸ€—πŸͺxx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    Hyper reflexes are all part of it 😏

    I've kicked a few green medics in my time 🀭 still, it's nice to see my leg moving so quickly πŸ‘πŸ‘

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.



      I am not ticklish at all. No where. Am I weird? I find it annoying. πŸ€”
      when i can think of something profound i will update this.


        My feet used to be extremely ticklish but are far less sensitive now. Which is lucky cos I've messed up my toes dragging them and standing on them all crunched up and they need dressings πŸ˜†
        Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

        Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

        Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.