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Sad loss of my husband Richard

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    Sad loss of my husband Richard

    I just wanted to say thank you to this forum for words of support over the last year when I have needed them.
    Richard sadly passed away on Sunday morning, he never got out of hospital from being admitted on March 7th with kidney stone and chest infection.
    He died peacefully with me and his children around him. We knew that this day would come but it was so sudden in the end as several times he rallied around giving us hope we would get him home as was his wish.
    This is my biggest sadness as we had arranged for him to get home today after battles with being accepted for care at home, we finally got continuing healthcare, for 4 weeks anyway initially.
    The system for being accepted for care so needs a shake up, the last weeks or months of life should not be fraught with worry over sorting this.
    I send my love and best wishes to all of you battling with this awful disease and all the family members who also live with the condition, you are all very brave lovely people who deserve the very best of care from everyone.
    Love Amanda xxx

    Oh Amanda, I am so sorry for your loss.

    Richard was a lucky man to have you.

    Heartfelt condolences to you and your family. I hope you have good support during this very difficult time.

    Look after yourself.

    Much love,
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


      Hi Amanda;

      Sorry to hear about Richard's passing and you and your families loss.

      Many people's care needs need a shake up especially CHC etc.

      Hugs Terry
      TB once said that "The forum is still the best source for friendship and information."

      It will only remain so if new people post and keep us updated on things that work or don't work and tips.

      Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.


        Very sorry to hear your news. Hugs to you and the family


          so sorry Amanda. R.I.P Richard xx


            Oh no!

            That’s such sad news Amanda. Please accept deepest condolences – and profound thanks for letting us know.

            I remember we talked nearly a year ago about the uncertainty of the rate of progression of MND, especially when other factors are involved. But clearly things deteriorated quickly towards the end. I’m so sorry.

            You did everything humanly possible. Try to take care of yourself now and remember all the good times with Richard.


            Diagnosed April 2017


              Dear Amanda,

              I'm very sorry to hear that Richard has passed away. Please accept my sincere condolences.

              Thinking of you and your family at this sad time.

              Kayleigh xx


                Dear Amanda,

                I am so very sorry for the loss of your beloved husband , Richard . It sounds like you were a devoted couple and you did everything that wad possible for him.

                I am thinking of you and hoping you have love and support around you.

                Love Debbie x


                  Hello Amanda,

                  Please accept my condolences for the loss of your beloved Richard.

                  I hope that the health care professionals change what is clearly a broken system driven by cost rather than compassion.

                  I’m going to do this even if it kills me!