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    One step closer

    I just met my new matron in CHC and she is putting the wheels in motion for my move to a 24h care home. Good news for the care. Bad news for early exit. πŸ‘πŸ˜€πŸ‘πŸ˜€xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Focus on having company and good wifi set up.

    Donna

    Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

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      #3
      Originally posted by matthew55 View Post
      ... she is putting the wheels in motion for my move to a 24h care home.
      Can you yea or nay a care home if you get a bad feeling about it?

      And, more importantly, what about the gnomes ???? πŸ₯°πŸ₯°πŸ₯°
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
      .
      ​

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        #4
        Originally posted by matthew55 View Post
        I just met my new matron in CHC and she is putting the wheels in motion for my move to a 24h care home. Good news for the care. Bad news for early exit. πŸ‘πŸ˜€πŸ‘πŸ˜€xx
        Does the care home know what’s coming πŸ˜ƒπŸ˜‰
        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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          #5
          I put it to a vote and they decided to come with me πŸ˜‚πŸ’šπŸ˜€πŸ€—xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

          Comment


            #6
            Originally posted by matthew55 View Post
            I put it to a vote and they decided to come with me πŸ˜‚πŸ’šπŸ˜€πŸ€—xx
            😁
            Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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              #7
              Originally posted by matthew55 View Post
              I put it to a vote and they decided to come with me
              Phew, they'd never survive without your TLC 😘😘
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
              .
              ​

              Comment


                #8
                matthew55 if you do decide to move into a care home you'll have 6 weeks before you decide to give up your home in the community....just in case you change your mind & decide to go home.

                Hope everything works out for you πŸ™

                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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