I just met my new matron in CHC and she is putting the wheels in motion for my move to a 24h care home. Good news for the care. Bad news for early exit. π‘πππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Focus on having company and good wifi set up.
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020. -
Can you yea or nay a care home if you get a bad feeling about it?Originally posted by matthew55 View Post
And, more importantly, what about the gnomes ???? π₯°π₯°π₯°βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Does the care home know whatβs coming ππOriginally posted by matthew55 View PostDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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I put it to a vote and they decided to come with me ππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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πOriginally posted by matthew55 View PostDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Phew, they'd never survive without your TLC ππOriginally posted by matthew55 View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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matthew55 if you do decide to move into a care home you'll have 6 weeks before you decide to give up your home in the community....just in case you change your mind & decide to go home.
Hope everything works out for you π
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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