Announcement

Collapse
No announcement yet.

I will still be me

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    I will still be me

    Exciting news re the new voice banking. I'm useless with tagging threads etc but Google i will still be me mnd.

    Basically you read a 20 minute book using microphone and speak unique turn it into your real voice. Believe rolls Royce are funding the mnda re rolling it out.

    Diagnosed May 2021 bulbar onset als.

    #2
    shelly21 sounds like good newsπŸ‘πŸ»πŸ˜˜
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

    Comment


      #3
      It is. My voice is not great but I believe that speak unique have a rescue service that attempts to repair your voice.

      Diagnosed May 2021 bulbar onset als.

      Comment


        #4
        Hi all,

        We're very excited about the project.

        You can find out more about the new voice-banking tool 'I Will Always Be Me' on our website - https://www.mndassociation.org/i-wil...e-is-launched/

        Thanks,

        Forum Admin.
        Our working hours are Monday to Friday 8:30am until 5pm

        Comment


          #5
          Originally posted by Admin_MND View Post

          You can find out more about the new voice-banking tool 'I Will Always Be Me' on our website - https://www.mndassociation.org/i-wil...e-is-launched/

          Thanks,

          Forum Admin.
          Hello Admin,
          could you give a bit more detail how MNDA authorise the payment, reading the blurb , we read it, it’s saved and you authorise it, how do you know we have MND, and reside in the UK , are doctors letters required or other proof of diagnosis
          thanks
          shaun
          As long as there’s golf and beer I’m happy

          Comment


            #6
            What an amazing piece of work that was done.

            Will investigate more.




            Donna - Carer partner for Thomas diagnosed with MND, Fail Arm Type in July 2020
            Donna

            Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

            Comment


              #7
              Remember that it's what we say that defines us. πŸ€”πŸ˜…πŸ˜πŸ‘€xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

              Comment


                #8
                Shaun I emailed mnd association and you go on the i will still be me site. You set up a login criteria then record your voice. There then is a page for submitting re being financed by mnda. Are you registered with mnda?
                Diagnosed May 2021 bulbar onset als.

                Comment


                  #9
                  Hello Shelly , yes I am , was sent the club wristband πŸ˜„,
                  s
                  As long as there’s golf and beer I’m happy

                  Comment


                    #10
                    Originally posted by Shaun View Post

                    Hello Admin,
                    could you give a bit more detail how MNDA authorise the payment, reading the blurb , we read it, it’s saved and you authorise it, how do you know we have MND, and reside in the UK , are doctors letters required or other proof of diagnosis
                    thanks
                    shaun
                    Hi Shaun

                    Once you finish the story, the recording is uploaded and transformed into a digital voice by SpeakUnique which can then be used with communication devices when needed.

                    At the moment although the website is available globally, the voice banking experience of recording the book and sending it to be made into a digital voice is available only to those in the UK, where we, the MND Association, are able to provide funding to those diagnosed with MND. You will receive links for details on the funding that we provide via email on completion of the voice banking process.

                    The funding is for people with MND living in England, Wales and Northern Ireland, thanks to donations from Dell Technologies and Intel. The free service also extends to people living with MND in Scotland, with funding provided by MND Scotland. If you do not qualify, you will have the option to pay for the Β£200 digital voice service cost yourself. As for your question around providing proof of diagnosis, we check details using the MND register, so as long as you are registered on that, you will qualify for funding.

                    Hope that answers your questions,

                    Forum Admin.
                    Our working hours are Monday to Friday 8:30am until 5pm

                    Comment


                      #11
                      I have opened an account on the site but have no idea yet how to proceed from there
                      It's all funny

                      Comment


                        #12
                        Hi. I have tried to record my husbands voice on the above but said my microphone was not strong enough. Does anyone know what type of microphone I need for a I pad. Has anyone succeeded recording your voice on β€œI will still be me”.x

                        Comment


                          #13
                          You need a headset with microphone. Think its noise reduction. I donated one to the association so maybe contact communications at the association as I loaned one last year from them.

                          I will be doing mine over the weekend I hope x
                          Diagnosed May 2021 bulbar onset als.

                          Comment


                            #14
                            Piglet here is an example of microphone headset. Do you have any friends that work in call centres that could lend you one?
                            You do not have permission to view this gallery.
                            This gallery has 1 photos.
                            Diagnosed May 2021 bulbar onset als.

                            Comment


                              #15
                              shelly21 thanks Shelly. I’ve borrowed my daughters. We will do my husbands hopefully tomorrow.xx

                              Comment

                              Working...
                              X