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    Bad hair day

    Last night my suction machine was u/s and my hoodie unzipped. Awful night and downstairs at 1am. Slept in one hour bits, sitting up, until 6am. Then a goddess walked through my door at 930 and suddenly my day brightened. Shallow but happy. πŸšͺπŸ˜πŸ‘πŸ˜‚xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Originally posted by matthew55 View Post
    Last night my suction machine was u/s
    Thicko that I am... what does "u/s" mean?

    Once again, you and I could have had a virtual night together πŸ˜‰ (Dudley had me awake most of the night πŸ₯΄) xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
    .
    ​

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      #3
      Useless
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        nothing wrong with having a goddess walk through the door. sometimes just having someone say hi can mean the difference between a good day and a bad day. when i used to walk my dogs i always found a fellow dog walker to talk to. i miss my dogs just because having a dog made talking more appropriate for some reason. the other day outside the phamacy everyone stood there in their own little worlds but i got everyone talking. it felt pretty good. shame we are all so scared of each other.
        when i can think of something profound i will update this.

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          #5
          When I had my last dog it always made me smile that only fellow dog walkers walk in a park in the pouring rain. β˜”πŸ•πŸŒ§οΈπŸ˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            A hardy bunch. But great once you got out and the right clothes on. Sharing tales of mud and dirt and how wet we'd got and the state of our cars and the state of the bed or sofa where our beloved had decided was the quickest option for getting dry. But we still love them.

            Let partner or kids try the same route and they wouldn't get the same understanding that our doggie friends get. No way.

            🀣
            when i can think of something profound i will update this.

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              #7
              Originally posted by denise View Post
              A hardy bunch. But great once you got out and the right clothes on. Sharing tales of mud and dirt and how wet we'd got and the state of our cars and the state of the bed or sofa where our beloved had decided was the quickest option for getting dry. But we still love them.

              🀣
              I'm intrigued Denise, if that’s what your beloved is like what are the dogs like? πŸ˜‚

              Richard

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                #8
                Very funny Richard. Made me think when we were on our very frequent visit to see the neurologist in Portugal. Stephen stood talking and talking. He wouldn't shut up or sit down. 'Sit, will you sit, come on sit down '. Stephen looked at Luciano and said 'she treats me like a dog, she'd rather have a dog'. I said 'I would and at least a dog would listen'. Even my Jack Russell would take notice. I lie she just ignored me.

                Miss my dogs. πŸ˜”
                when i can think of something profound i will update this.

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