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Emotional Lability??

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    Emotional Lability??

    Today I found myself crying at a really trivial thing. My daughter put the external battery on my NIV machine- great - then I saw she hadn't put the machine in the usual position next to my bed. No big E....right? So why did I cry??

    I tried to tell her in my indecipherable voice made worse by crying....it's in the wrong place...then cried more...now she cries too....

    I mean considering the disastrous effects MND is having on my body....for which I've rarely cried....I'm distraught because a machine is facing the 'wrong' way!!!

    Is it time for anti depressants...is this emotional liability kicking in....just wondering how others experience this.

    I'm usually not a 'cryer' πŸ€”πŸ˜
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

    #2
    LindaB I get that big time. I’ve never been a cryer and on antidepressants but still cry over both little and big things. Also laugh inappropriately.
    Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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      #3
      Thanks Rosemary6NT MND the gift that keeps on givingπŸ˜’
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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        #4
        Originally posted by LindaB View Post
        Thanks Rosemary6NT MND the gift that keeps on givingπŸ˜’
        Sorry πŸ˜”
        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

        Comment


          #5
          Originally posted by LindaB View Post
          ... then I saw she hadn't put the machine in the usual position next to my bed. No big E....right? So why did I cry??
          I wouldn't attribute it purely to EL, but no doubt that plays a role - you're not going to like this hypothesis more than if it were EL 😬 but, for me at least, when things are not in their correct position, it lays bare my inability to reach the item and/or knowing how I will struggle doing x, y or z, simply because my mug is 2cm too far left.

          My helplessness hits me smack in the face + stress + even the slightest hint of EL = tears before bedtime 😏

          I don't take any antidepressants, I've nothing against them, if I know why I do as I can handle it. 😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
          .
          ​

          Comment


            #6
            I agree with Ellie. I get so frustrated when I cant do certain things. Then when I try to explain it just causes a mental explosion. But I am a control freak and nobody can do it like me lol x
            Diagnosed May 2021 bulbar onset als.

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              #7
              I was crying at odd times until I started happy pills
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                LindaB I haven’t experienced the laughter but, in November I was experiencing the tears frequently - just when thinking about something poignant. Also meant I couldn’t listen to music as the effect was immediate. Consultant Neurologist prescribed a tiny daily dose of Citalopram (8 drops per day). Wonderful stuff - within a week the problem had totally gone. Back to my normal heartless self! No side effects
                Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

                Comment


                  #9
                  PeterPan have you stayed in it or was it for a short period?
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                  Comment


                    #10
                    Ellie yes I take your point...I had visions of the NIV facing the wrong way meaning switching on would be impossible from bedπŸ™ƒ

                    Then trying to say that with my garbled voice...😡

                    I then felt guilty as upset my daughter😞

                    ​​​​​​I'll keep a check on my mood😘😘
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                    Comment


                      #11
                      Originally posted by shelly21 View Post
                      I agree with Ellie. I get so frustrated when I cant do certain things. Then when I try to explain it just causes a mental explosion. But I am a control freak and nobody can do it like me lol x
                      Me too...control freak😜

                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                      Comment


                        #12
                        Originally posted by Ellie View Post
                        I wouldn't attribute it purely to EL, but no doubt that plays a role - you're not going to like this hypothesis more than if it were EL 😬 but, for me at least, when things are not in their correct position, it lays bare my inability to reach the item and/or knowing how I will struggle doing x, y or z, simply because my mug is 2cm too far left.

                        My helplessness hits me smack in the face + stress + even the slightest hint of EL = tears before bedtime 😏

                        I don't take any antidepressants, I've nothing against them, if I know why I do as I can handle it. 😘😘
                        I can relate that
                        It's all funny

                        Comment


                          #13
                          Originally posted by PeterPan View Post
                          LindaB I haven’t experienced the laughter but, in November I was experiencing the tears frequently - just when thinking about something poignant. Also meant I couldn’t listen to music as the effect was immediate. Consultant Neurologist prescribed a tiny daily dose of Citalopram (8 drops per day). Wonderful stuff - within a week the problem had totally gone. Back to my normal heartless self! No side effects
                          me too
                          It's all funny

                          Comment


                            #14
                            Originally posted by Ellie View Post
                            I wouldn't attribute it purely to EL, but no doubt that plays a role - you're not going to like this hypothesis more than if it were EL 😬 but, for me at least, when things are not in their correct position, it lays bare my inability to reach the item and/or knowing how I will struggle doing x, y or z, simply because my mug is 2cm too far left.

                            My helplessness hits me smack in the face + stress + even the slightest hint of EL = tears before bedtime 😏

                            I don't take any antidepressants, I've nothing against them, if I know why I do as I can handle it. 😘😘
                            For me, it’s the mental energy required to explain why that 2 cm is such a crisis. My husband is a lovely man and does his best to take care of me but he will move thing to a position that makes sense to him. And then I need to explain, usually in great detail, why I know my needs best and could he please just listen.

                            I am not dealing well with the loss of independence. I’m usually at the point of tears before lunchtime never mind bedtime. 😒
                            Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

                            Comment


                              #15
                              Maria C especially when trying to explain with a very limited voiceπŸ˜“
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                              Comment

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