Announcement

Collapse
No announcement yet.

Every day

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Every day

    Every day I have to decide whether it is my last day. Sad but true.
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

    #2
    no it isnt

    xxx
    when i can think of something profound i will update this.

    Comment


      #3
      Still isnt. I wont let you.
      when i can think of something profound i will update this.

      Comment


        #4
        Originally posted by matthew55 View Post
        Every day I have to decide whether it is my last day. Sad but true.
        Sending you a big hug
        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

        Comment


          #5
          Dont they say live every day like it's your last. It's my best incentive not to do housework ๐Ÿคฃ
          when i can think of something profound i will update this.

          Comment


            #6
            Originally posted by matthew55 View Post
            Every day I have to decide whether it is my last day.
            That decision might not be yours to maked if you're nuked by you-know-who... ๐Ÿ˜‰๐Ÿ˜๐Ÿค—๐Ÿ˜˜
            โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            โ€‹

            Comment


              #7
              Originally posted by matthew55 View Post
              Every day I have to decide whether it is my last day. Sad but true.
              Havenโ€™t been on here very long but would miss you if you werenโ€™t on here.

              Comment


                #8
                Look Matthew I'm not sitting on the back seats on my own. ๐Ÿ˜˜
                when i can think of something profound i will update this.

                Comment


                  #9
                  Stick with it Matthew x

                  Comment


                    #10
                    It's nearly the weekend xxx
                    when i can think of something profound i will update this.

                    Comment

                    Working...
                    X