Every day I have to decide whether it is my last day. Sad but true.
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xx -
no it isnt
xxxwhen i can think of something profound i will update this. -
Still isnt. I wont let you.when i can think of something profound i will update this.Comment
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Sending you a big hugOriginally posted by matthew55 View Post
Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Dont they say live every day like it's your last. It's my best incentive not to do housework ๐คฃwhen i can think of something profound i will update this.Comment
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That decision might not be yours to maked if you're nuked by you-know-who... ๐๐๐ค๐Originally posted by matthew55 View Post
โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Havenโt been on here very long but would miss you if you werenโt on here.Originally posted by matthew55 View Post
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Look Matthew I'm not sitting on the back seats on my own. ๐when i can think of something profound i will update this.Comment
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Stick with it Matthew xComment
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It's nearly the weekend xxxwhen i can think of something profound i will update this.Comment
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