Thanks to my palliative doc I have two new patches, one behind ear for saliva and one on my back for pain. Plus a brilliant nasal spray called a dyemister. Early indications are excellent! ππππ€xx
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Originally posted by matthew55 View PostI have two new patches, one behind ear for saliva and one on my back for pain.
And, if you thought you'd finally got your laxative and bowel regimen kind of sorted, the pain patch will probably throw a spanner in the works... πππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Originally posted by matthew55 View PostBack pain still a problem.
I'm sorry, that must be very debilitating for you and sap any remaining reserve you may have. π€π€ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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Originally posted by matthew55 View PostIt only happens in bed.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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