Yesterday a full wash and moisturise then today hair wash and shave. They even built my new fan. π
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
You still look like a pink cat with whiskers π€£when i can think of something profound i will update this. -
Great to hear, but... isn't that what they're meant to do π€Originally posted by matthew55 View Post
Your last bunch must have really been bad π±π±ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Very, very badBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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matthew55 - hearing this has cheered me up. Doesn't seem too much to ask... but I know there are no guarantees xxDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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