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My wonderful carers

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    My wonderful carers

    Yesterday a full wash and moisturise then today hair wash and shave. They even built my new fan. πŸ‘
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    You still look like a pink cat with whiskers 🀣
    when i can think of something profound i will update this.

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      #3
      Originally posted by matthew55 View Post
      Yesterday a full wash and moisturise then today hair wash and shave.
      Great to hear, but... isn't that what they're meant to do πŸ€”

      Your last bunch must have really been bad 😱😱😟😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Very, very bad
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          So glad youve got the carers you deserve at last matthew55 xxπŸ˜˜πŸ€—πŸ€—

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            #6
            matthew55 - hearing this has cheered me up. Doesn't seem too much to ask... but I know there are no guarantees xx
            Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

            Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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