Yesterday a full wash and moisturise then today hair wash and shave. They even built my new fan. π
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
You still look like a pink cat with whiskers π€£when i can think of something profound i will update this. -
Great to hear, but... isn't that what they're meant to do π€Originally posted by matthew55 View Post
Your last bunch must have really been bad π±π±ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Very, very badBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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matthew55 - hearing this has cheered me up. Doesn't seem too much to ask... but I know there are no guarantees xxDiagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.Comment
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