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My wonderful carers

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    My wonderful carers

    Yesterday a full wash and moisturise then today hair wash and shave. They even built my new fan. πŸ‘
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    You still look like a pink cat with whiskers 🀣
    when i can think of something profound i will update this.

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      #3
      Originally posted by matthew55 View Post
      Yesterday a full wash and moisturise then today hair wash and shave.
      Great to hear, but... isn't that what they're meant to do πŸ€”

      Your last bunch must have really been bad 😱😱😟😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Very, very bad
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          So glad youve got the carers you deserve at last matthew55 xxπŸ˜˜πŸ€—πŸ€—

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            #6
            matthew55 - hearing this has cheered me up. Doesn't seem too much to ask... but I know there are no guarantees xx
            Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

            Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

            Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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