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    #16
    shelly21 Sounds like something I need, having spates of coughing and not being able to breathe again. Hate it.
    Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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      #17
      Sorry to hear that rosemary. I've used it 3 times today using saline and it does seem to have helped. Get asking for one x
      Diagnosed May 2021 bulbar onset als.

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        #18
        Nebulisers are great little things and, as they only use saline, you're not using yet another medicine (although they can be used with meds if necessary)

        The trick is to use the neb regularly, not only when mucus is thick - a daily 15min session can be a great preventative measure - but of course your nurse/doctor might give you different instructions. xx

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #19
          Ellie my respiratory consultant wants me to use it x4 a day. Today I actually fitted 4 sessions in and I'm really surprised how well its worked.

          It helps even more so with nasal congestion.

          X
          Diagnosed May 2021 bulbar onset als.

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            #20
            Originally posted by shelly21 View Post
            Ellie my respiratory consultant wants me to use it x4 a day.
            If I have a cold, I'll use it 3-4x per day, otherwise I mostly use it 1-2x per day, which keeps me phlegm free 👍👍

            Great that you're using it shelly21 and finding it good. xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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