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New symptom?

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    New symptom?

    Hope someone can help
    i was diagnosed 8 days ago now with left arm being worst impacted so far and slight breathing issues

    my question is how will I know when I get a new symptom that it is that and not something that happens to everyone
    Diagnosed 17/2/22
    summer 2020 - Left arm onset
    Jan 2022 - breathing now affected

    My MND started in my left arm and spread to my left hand after a few months. My right arm started going after that and next came the slow walking though I still can walk very slowly and gingerly. Think you get to know your own body and recognise the symptoms of MND which can be a bit different for everyone.


      We all progress differently. I think the best you can do is to monitor symptoms. Be aware of what the symptoms are, there are many great sources on the web talking about MND/ALS symptoms.

      Usually, one would recognize the same symptoms spreading to other parts of the limbs (limb onset) or bulbar related (tongue, speech, facial weakness).
      Last edited by Johnny5; 26 February 2022, 12:04.


        Just as we're all different before we remain different after. πŸ˜‰πŸ€”πŸ˜πŸ˜Žxx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx


          Originally posted by Chelle73 View Post
          my question is how will I know when I get a new symptom that it is that and not something that happens to everyone
          There are some symptoms you will experience which are almost exclusive to ALS/MND, some which are indirectly related to you having ALS/MND and, as you say, affect everybody and have nothing to do with ALS/MND.

          How will you know?? Ah, that's a good question... Firstly, if ever you are concerned, seek proper medical advice from your GP, MND Nurse, Neuroligist, 111 or the emergency services.

          In the initial period, you'll probably find yourself a bit at sea with even the merest change leaving you wondering, and that is entirely natural, then you'll kind of learn what's going on with your body and put 2 and 2 together - if you get 5, there's something going on.

          You'll also learn from reading posts, even if they don't make a lot of sense to you and your stage of progression, but you'll see people post a 'has this ever happened to you?' questions, the reply invaribly is 'yes', and experiences shared = worry halved!

          Love Ellie xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user