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    Sunday service

    I just discovered that I can no longer use stairs. I got to last step and couldn't take it for fear that I would fall back. I have to wait until tomorrow to hurry up bringing my bed downstairs and a commode delivered. πŸ›ŒπŸ‘€πŸ˜€πŸ˜Žxx


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    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Our local hospice organised a stairlift for me. It didn’t take long. It’s a reconditioned one and they will take it back when I’m no longer around or can’t use it anymore. Are your stairs straight? Might be worth enquiring?
    Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes

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      #3
      Stair lift already deemed unable to fit
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        matthew55 - I'm no longer stair compatible and started falling backwards on them. Luckily I have hubby here to walk behind me doing a weird propping up with his knee up my bum and squeezing my hand on the banister... once a day is my limit... roll on stair lift fitting on Tuesday (we are renting one).

        I hope you get settled safely downstairs xx
        Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

        Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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          #5
          Better safe than sorry Matthew. Hope you get fixed up okay tomorrow x
          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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            #6
            Sorry to hear that, Matthew. I found this week that I can’t manage single steps any more. Neither leg will bear my whole weight and lift me at the same time. These things suddenly hit you.
            Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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              #7
              matthew55 my stairs are also not suitable for a stair lift. I've been sleeping downstairs in the dinning room since January (hospital bed). I have to say it's made my evenings more enjoyable as I no longer spend the evening wondering if I'll make it up safely.
              Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

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                #8
                Originally posted by Tabbycat View Post
                matthew55 I have to say it's made my evenings more enjoyable as I no longer spend the evening wondering if I'll make it up safely.
                Isn’t it strange things we took for granted and never even thought about become such a big concern. I have the same thinking about standing up from my wheelchair (actually I can’t, I push/pull myself up) to transfer to riser, bed etc

                Richard
                Richard

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                  #9
                  I am still just about managing the stairs - helped by the additional bannister rail that my OT arranged to have fitted.
                  I still have reasonable strength in my arms, so when the legs go I could still "bum shuffle" up the stairs.
                  We do have a contingency plan for dividing up our large living room to make a downstairs bedroom, but the ideal solution is getting an extension built as an accessible annex for me. I'm waiting for an architect to turn up this morning so we can discuss plans.
                  Hi, I'm Eddie.
                  Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                  Still walking and talking, and wondering what the future will bring.

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                    #10
                    matthew55 hope it gets sorted today buddyπŸ‘πŸ»πŸ˜‰
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                      #11
                      They are moving it now
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #12
                        matthew55 Glad to hear they’ve got things moved.

                        I live in a one floor home, with a basement. I gave up on stairs last July. On the bright side, DH gets to do all the laundry since the washing machine lives downstairs. πŸ˜ŽπŸ˜†
                        Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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                          #13
                          Originally posted by Tabbycat View Post
                          matthew55 my stairs are also not suitable for a stair lift. I've been sleeping downstairs in the dinning room since January (hospital bed). I have to say it's made my evenings more enjoyable as I no longer spend the evening wondering if I'll make it up safely.
                          Can I ask what makes a stairs not suitable for a stairlift. I am having a man round on Friday to give me a quote for one. Will need a curved one but my stairs are quite wide so I hope it will be ok.

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                            #14
                            The OT said so
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                              #15
                              Originally posted by Aidan in Shrewsbury View Post
                              Can I ask what makes a stairs not suitable for a stairlift.
                              More often than not, it's the amount of space around the landing places which is an issue, bearing in mind that extra space may be needed to transfer on and off a wheeled chair or a hoist.



                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

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