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What has made you happy since MND diagnosis?

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    What has made you happy since MND diagnosis?

    Life with MND is very hard and difficult. I thought it might be nice to share about what has made you happy since your or your partners MND diagnosis.

    For me it’s - Finding I have some very caring friends.

    Richard
    Richard

    #2
    richard [QUOTE][For me it’s - Finding I have some very caring friends./QUOTE

    Likewise.
    In addition I have also discovered new friends (I include you all in this group) and locally people who where acquaintances, have now become very good friends.

    I get a better view from my wheelchair when I go to the cinema and theatre (I'm not very tall and the wheelchair seat is much higher up than the Theatre stalls) πŸ˜„
    Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

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      #3
      Discovering you guys, and the grim humour that can be brought to bear on our situation.
      Also, Blue Badge parking privileges. Since I can still walk I'm just waiting for some knob to challenge me with "where's your wheelchair" when I park in a disabled slot, just so I can tear them apart (verbally of course)
      Hi, I'm Eddie.
      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
      Still walking and talking, and wondering what the future will bring.

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        #4
        Agree with you guys, kind and caring friends such a blessing. Is this thread a new version of "Things I feel grateful for?". x
        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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          #5
          I have met some wonderful people since I started this journey 6 years or so ago…..my PA’s, my MND support team, OT’s and various Doctors a nurses along with other people such as you - my fellow travellers.

          I have also learnt a lot about myself too, in particular my own resilience and my ability to cope (most of the time πŸ˜…) with my progressive disabilities.

          Love to you all ❀️

          James
          Foxes Never Quit πŸ’™

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            #6
            Support of family and friends for me too. It has made me more tolerant of people who do things very slowly as I am now one of them. Biggest regret is taking my health for granted for so long just to be able to do things with no hassle would be wonderful.

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              #7
              Absolutely NOTHING!
              Husband Albert diagnosed PMA Feb 21

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                #8
                Originally posted by Heather R View Post
                Agree with you guys, kind and caring friends such a blessing. Is this thread a new version of "Things I feel grateful for?". x
                1 Reason to be cheerful πŸ’“πŸ’

                Similar πŸ€“πŸ‘πŸ»


                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                  #9
                  I agree, its family and some fantastic friends in particular the unwavering love, support and patience of my husband.

                  The first thing he said to me after I was diagnosed was that we were in this together.

                  Its great to have our forum friends to understand too xxxπŸ˜˜πŸ€—πŸ’•

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                    #10
                    I was in a very busy job I no longer enjoyed. This forced me to, eventually, slow down and stop that job....but then fill that time with things I cared about but previously didn't have enough time for. For me, this is fighting for animal welfare causes and wildlife/environment conservation. Clearly it is not a better life for me in terms of health, but I have a new purpose.😊

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                      #11
                      You guys have been my main support. I have days when I really can't cope and I'm there at the moment, but I've found some lovely people who have brushed me down and pulled me back up. I have a lovely lad trying to chase up available help for me and my husband through luke pollard mp, he's really doing his best, bless him. Even a couple I met by chance who offered to sit withStephen.. Jo Campbell my local mnd support and Ellie who we all love. Neighbours who picked Stephen off the floor when the ambulance service quoted hours before they could call and another neighbour who offered help even though they are 86 and nearly deaf. Restored my faith in human kindness.

                      Hugs to everyone xxxx
                      when i can think of something profound i will update this.

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                        #12
                        Oh yeah and sue from Wakefield who listens to me complain and makes me laugh instead of cry. We both share the same sense of humour which makes the worst days seem doable. Another friend who I seem to have lost but ...... I'm missing the jokes so thank you to Matthew for those.
                        xxxx
                        when i can think of something profound i will update this.

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                          #13
                          Honestly, it’s my 8 year old daughterπŸ’• She is both hilarious and exhausting, but continues to help me to live in the moment! I’ve managed to tell her that I have a disease that has made me permanently disabled and the next day she brought home a book about inspirational people with disabilities from her school library and then asked if I wanted to play minecraft!?!😁🀣
                          Children and their uncanny sense of joy in the everyday continues to make me happy since learning I have a MND 🌻

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                            #14
                            I worked in a fast corporate environment in London and never came into much contact of the caring community and how much care there is. It still amazes me.

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                              #15
                              Madge I have always thought that kind of environment can not nourish and sustain the best of human nature. X
                              Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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