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    CHC funding approved

    I have good news, CHC funding has been approved in full. The virtual meeting was a nightmare though with me coughing, choking, crying and needing lung clearance throughout. It was a genuine stellar performance 😒.
    Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

    #2
    Sorry you had such a horrendous ordealπŸ˜”

    But whoop whoop whoop 🍾CHC funding😁😘
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #3
      Good for the funding. At least they could see what you have to deal with. I just wish you didn't 😘
      when i can think of something profound i will update this.

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        #4
        Great news Rosemary6NT It must be such a relief to have it all approved.
        Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

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          #5
          Brilliant news πŸ“°πŸ‘πŸ€—πŸ˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            Very glad that has been sorted for you.

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              #7
              Great news!
              Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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                #8
                Rosemary6NT That must be a huge relief for you both, great to hear πŸ‘πŸ‘

                I hope asessors were contrite at putting you through such an ordeal. πŸ€—πŸ˜˜
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  Good to hear Rosemary 😘
                  Foxes Never Quit πŸ’™

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                    #10
                    Rosemary6NT so pleased you've got funding but so sorry you had to go through such an ordeal to get it xxxπŸ˜˜πŸ€—

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                      #11
                      Rosemary6NT

                      What an ordeal to go through but pleased you got funding. I hope things improve for you x
                      Diagnosed 3rd November 2021 Bulbar Onset

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                        #12
                        Rosemary6NT That’s great news but such a shame you need it. Big hugs for you.
                        Richard

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                          #13
                          Thank you all xx
                          Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                            #14
                            & Rosemary6NT there's no ceiling on costs if it's CHC funding...have to meet ALL assessed needsπŸ˜‰πŸ˜˜
                            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                              #15
                              Originally posted by LindaB View Post
                              & Rosemary6NT there's no ceiling on costs if it's CHC funding...have to meet ALL assessed needsπŸ˜‰πŸ˜˜
                              That’s good to know xx
                              Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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