How to live with fear and panic?

[LindaB]

Rosemary6NT it's good to have choices...& these can change to whatever suits you. I've chosen home & possibly hospice...both better than hospital in my opinion.

I'm hoping you have better days 🙏😘

[shelly21]

Rosemary6NT sorry your at this point but I'm glad you are in control of your choices. I am thinking of you lots x

when I was first diagnosed last year I was adamant I wanted to be at home at the end. However I've since changed my views. Thank you for sharing your experience with us and from me it helps in the realistic scenarios that could happen. X

[Ellie]

Rosemary6NT I'm sorry your deterioration has been relentless.

I have made the same decision and am in awe of how the palliative nurses always speak with such respect, compassion and dignity about end of life care. They have left no question unanswered and I am comfortable with what's going to happen.

Sending you love and hugs xx

[Rosemary6NT]

I have decided to ask for a place in the hospice to have my end of life managed, I was so impressed with how they handled my situation. Discussion with my neurologist on Monday about the speed of my deterioration suggest that I may only have a few months to go so decisions have to be taken. 😕

[Rosemary6NT]

Rosemary6NT That sounds very scary, traumatic and exhausting Rosemary 😟

Gold star (once again) to those worderful palliative care people and their box of tricks - will you take that medication on an ongoing basis or is it more of a reactive med?

Be super kind to yourself today 🤗🤗😘😘

The drugs are kept at home for use as and when required by medics or nurses as they require injection

[LindaB]

Rosemary6NT I believe 'anticipatory medicines' are often kept in our homes for use by the palliative/hospice team if necessary.

[Deb]

Oh Rosemary6NT. How awful for you.

Yes its good the team were on hand so quickly but sorry you needed them.

Big hugs to you xx😘😁

[Ellie]

Rosemary6NT That sounds very scary, traumatic and exhausting Rosemary 😟

Gold star (once again) to those worderful palliative care people and their box of tricks - will you take that medication on an ongoing basis or is it more of a reactive med?

Be super kind to yourself today 🤗🤗😘😘

[LindaB]

Rosemary6NT what a terrifying experience....good to know the hospice team are so responsive🙏

Hope you have a rest day today....😘

[Heather R]

Rosemary6NT comforting to know such drugs exist. Do people keep these just in time meds at home, or only administered by hospice? X

[shelly21]

Then I hope today is a good day for you. These scary days take its toll so hopefully you can rest and recharge x

[Rosemary6NT]

Rosemary6NT sorry you are having such a tough time. How are you feeling today? X

Relieved that the hospice at home system works so well. Feel much calmer today. Thanks Shelly xx

[shelly21]

Rosemary6NT sorry you are having such a tough time. How are you feeling today? X

[Rosemary6NT]

I did the works yesterday 😭. It started with a small cough after using my inhaler. It kept going, my lungs filling with a bubbly soft foam. No matter how much I used the cough assist, I could not stop or clear or breathe. Had to call in the hospice team who cracked out the just in case meds which thankfully calmed me down and knocked me out. There was a drug to dry lung secretions that worked wonders. Very dry mouth this morning, but that’s ok. Very relieved this morning

[aussiegirl]

I use morphine sulphate 2mg/ml 1ml every 4 hours I'm awake now. When extra panicked I use sublingual lorazepam. Unfortunately that's becoming more frequent

Sorry, I didn't realize you were already taking it.