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    Trapped wind

    Hi, any suggestions for dealing with trapped wind. I feel like I need to pass wind but cannot. This is a regular occurrence. I spend almost all of my day sitting ( can’t walk any longer) which I suspect is not helping. Bowel movements are not as regular as they used to be which causes some challenges. GP has prescribed Sodium picosulphate, cosmocol and micro enemas to help with number 2s. Just need to resolve the trapped wind to be able to relax.

    #2
    Are you still able to eat? Deflatine by Rennie is very good if you can chew. Plenty of water afterwards helps. Hot water also helps. Hope you can get relief soon.
    Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes

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      #3
      Originally posted by Miker View Post
      GP has prescribed Sodium picosulphate, cosmocol and micro enemas to help with number 2s.
      Mike, I presume you don't take all of the above at the same time - abdominal pain, bloating and flatulence are common side effects with laxatives (as if we were not uncomfortable enough already 😟)

      I have a feeding tube so I can vent my stomach, but peppermint tea or ginger can help too, as can massage and heat. xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
      .

      Comment


        #4
        Hakuna, Thanks for the suggestion I have ordered some Deflatine. Ellie, thanks andno, not all at the same time. Still trying to achieve a successful regime.

        Comment


          #5
          Originally posted by Miker View Post
          Hi, any suggestions for dealing with trapped wind. I feel like I need to pass wind but cannot. This is a regular occurrence. I spend almost all of my day sitting ( can’t walk any longer) which I suspect is not helping. Bowel movements are not as regular as they used to be which causes some challenges. GP has prescribed Sodium picosulphate, cosmocol and micro enemas to help with number 2s. Just need to resolve the trapped wind to be able to relax.
          I feel for you Miker. Riluzole has the side effect in me of producing a lot of wind. I, too, sit all day. I have found that when I’m in my riser recliner changing my position from sitting to lying fully reclined with my feet above my head does encourage some movement of trapped wind 😶
          Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

          Comment


            #6
            Originally posted by Ellie View Post
            I have a feeding tube so I can vent my stomach, but peppermint tea or ginger can help too, as can massage and heat. xx
            Venting via the PEG is brilliant. Instant relief 😀
            Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

            Comment


              #7
              Miker

              My husband get relief from over the counter tablets, Doctor Gut - IBS relief

              Donna

              Husband diagnosed July 2020
              Donna

              Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

              Comment


                #8
                Like some of you I sit all day. I had my evening meal today I couldn’t eat it all as I have pain in my tummy and feel so uncomfortable, yet I feel hungry. It’s obviously a combo of Riluzole and sitting all day and trapped wind !!! The joys 😵‍💫

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                  #9
                  My husband's wind is definitely not trapped 😳
                  when i can think of something profound i will update this.

                  Comment


                    #10
                    Originally posted by Ellie View Post
                    Mike, I presume you don't take all of the above at the same time - abdominal pain, bloating and flatulence are common side effects with laxatives (as if we were not uncomfortable enough already 😟)

                    I have a feeding tube so I can vent my stomach, but peppermint tea or ginger can help too, as can massage and heat. xx
                    Ellie by venting do you mean the air just bubbles up when you do a PEG feed? Thanks x
                    Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                    Comment


                      #11
                      Farting is not straightforward when you are sat in a power chair all day 😳😳😳
                      Foxes Never Quit 💙

                      Comment


                        #12
                        Originally posted by Heather R View Post
                        Ellie by venting do you mean the air just bubbles up when you do a PEG feed?
                        If I have painful wind in my stomach, it can be released by using the feeding tube as a handy orifice/vent.

                        There is a technique to it so as the stomach contents stay put and just the air is released, but basically an empty 60ml syringe, minus its plunger, is attached to the feeding tube, held up higher than the stomach, clamp is opened and the air can escape for instant relief 👍👍

                        If you have a PEG Nurse or maybe a Dietitian, and want to ask them to show you or tell you about venting your stomach when you have wind, fire away. xx
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                        .

                        Comment


                          #13
                          Ellie thanks that’s useful to know xx
                          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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