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Riluzole and Kylie Minouge

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    Riluzole and Kylie Minouge

    Got my prescription through for Riluzole yesterday and have taken my first three tablets. No side effects so far except I may have had a couple of hallucinations. Firstly I thought Cardiff City had won two games in succession for the first time this season yesterday but it may not be a hallucination as todays papers appear to be confirming it.

    The second one was I thought Kylie Minogue climbed into my bed last night. There is no sign of her this morning so I am not so sure. Has this happened to anyone before. I won’t go into what happened but it wasn’t the worst thing in the world. I will keep taking the Riluzole and see if she comes back.

    #2
    Best reason EVER to keep taking the meds
    Hi, I'm Eddie.
    Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
    Still walking and talking, and wondering what the future will bring.

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      #3
      Are you sure you are taking riluzol and not something else. 🤣
      when i can think of something profound i will update this.

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        #4
        Damn!

        Been taking it for years and never had so much as a "G'day mate" from her.

        Must be using the wrong brand.

        Mind you....Helen Mirren did stop by a few nights ago....

        Doug
        Diagnosed April 2017

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          #5
          please can I have some of your riluzole? I couldn't care less about the football but Kylie? I knew there had to a positive to this disease!

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            #6
            I'm not sure about taking Riluzole... not on it yet and not sure Kylie in my bed is a good idea... I'm smaller than her. She might squash me.

            Thanks for making me laugh 🙂
            Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

            Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

            Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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              #7
              Got a pack of riluzol in our bedroom drawer. I'd take them if I thought Richard here would turn up 🤗
              when i can think of something profound i will update this.

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                #8
                Richard gere. Stupid predictive text. 🤨
                when i can think of something profound i will update this.

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                  #9
                  Yes I also thought I slept with Ms Minogue after first taking Riluzole…… however upon waking it turned out just to be Jason Donovan 🥺
                  Foxes Never Quit 💙

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                    #10
                    I phoned up Kylie and told her I had a dream about her.
                    "Did you"? she asked.
                    "No" I replied, "you wouldn't let me"

                    ...I'll get my coat
                    Hi, I'm Eddie.
                    Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                    Still walking and talking, and wondering what the future will bring.

                    Comment


                      #11
                      Originally posted by denise View Post
                      Richard gere. Stupid predictive text. 🤨
                      And there I was trying to work out how to get to Plymouth 😂😂😂
                      Richard

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                        #12
                        Ok well if you are available and he isn't then you've got a deal 😉
                        when i can think of something profound i will update this.

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                          #13
                          Thanks for giving me a laugh this morning guys x
                          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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