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    PEG tape

    Hello 👋🏻
    My husband had a PEG fitted just over 2 weeks ago. We have been using micro pore tape at night just to stop it getting caught when he moved in bed. Unfortunately this tape is causing some irritation to his skin. I know there are a variety of tapes you Cani get. I just wondered what most people use overnight? We were given a pocket belt for him to wear but it’s pretty uncomfortable.
    Any suggestions greatly appreciated 😊

    #2
    dolomitesquirrel Is he already using hypoallergenic tape? xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      We've tried everything. It either doesn't stick or it aggravates his skin.
      when i can think of something profound i will update this.

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        #4
        Hi all. I had the sensitivity re tape. I purchased leukoplast hypafix it comes on a roll and different sizes. Think it cost me £5 but for a bit roll.
        Diagnosed May 2021 bulbar onset als.

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          #5
          https://www.medisave.co.uk/hypafix-5...4aAqnFEALw_wcB
          Diagnosed May 2021 bulbar onset als.

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            #6
            https://www.hyperdrug.co.uk/hypafix-...0aAtopEALw_wcB
            Diagnosed May 2021 bulbar onset als.

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              #7
              shelly21 thankyou will try those
              Ellie yes already using it denise did wonder whether that might be the case

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                #8
                It works for me so hoping it will help. I can even go in shower and it stays on.
                but at least its not that expensive so worth a go. X
                Diagnosed May 2021 bulbar onset als.

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                  #9
                  We did use tape initially but it caused a rash. Now I screw it shut so that the end with the screw fitting fits around the tube near the hole into the stomach so it firms a loop. No tape required and held out of the way. (not explaining well - the screw cap has a length of plastic holding the cap to the rest of the external peg, I hook this around the peg tube itself)

                  It does create a loop that could catch though.

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                    #10
                    MMG thank you we will try that technique 👍

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                      #11
                      Clinifix?
                      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                        #12
                        Hi …. My husband Andy uses ‘Mefix’ tape which I get online. It sticks well and doesn’t irritate if the skin is dry and cream/hair free! Much better than any other tape we’ve tried over the last 3years.
                        Angela x

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                          #13
                          AngelaR A warm welcome to you and Andy.

                          Thanks for posting, Angela.

                          Love Ellie.
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                            #14
                            I've been waiting since December for peg tape. So once more when dietician came last month I brought up the fact that the cleaning gauze and cream and peg fixers haven't turned up. So she puts together another request to doctors surgery. Hey ho they've lost it again.

                            This is the 3rd prescription they have lost. They asked me to arrange a asthma appointment which I already have AND unknown to me the doctor had i
                            when i can think of something profound i will update this.

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                              #15
                              Sorry I was cut off....
                              AND the doctor had in his possession a letter from neurologist stating that if I needed help with calming Stephen he could prescribe this medication
                              when i can think of something profound i will update this.

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