Originally posted by Rosemary6NT
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Maria C I think it is normal and understandable to have days where the weight of loss of capability weighs heavily.
I am fortunate that I don't get many. I am good at finding positives - I can't work, so I have free time.
I can't cook - so someone else decides what is for dinner.
I struggle with most of my hobbies - so I do them more slowly, get help, do something different, find new ones.
My voice is not good and I cannot sing anymore... so I make annoying noises or find gadgets that do 🤣.
My neices came and wanted to play (age 2 and 5). I couldn't get on the floor, but we incorporated my powerchair into the magical unicorn world... which also included a short ride on my lap.
I can still do so much loving, listening, laughing and feeling. On the bad days I remember this and wait for a good day. Because for me they always come. I hope they come back for you too xxDiagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.
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