Sadly I fell over today. I was walking with my crutch over to my chair and i suddenly overbalanced. No idea why. Feeling battered and bruised and husband has banned my crutch and insisted i use the frame instead. Feeling a bit pissed off. The OT is coming tomorrow so will ask her advice. It was a huge struggle for husband to get me up. Not good for his bad back but he managed to heave me onto a dining room chair. Feel rather spaced out.
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Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes -
I'm sorry. Its such a big deal for us isn't it. I must admit I won't use a crutch or stick because I worry re my balance. Please don't play it down with OT and ask for their advise. XxxDiagnosed May 2021 bulbar onset als. -
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Thank you for your sympathy ladies.Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comesComment
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So sorry youve had a fall Hakuna . It leaves us battered and bruised both mentally and physically.
I know how hard it is to use more mobility aids but be honest with your OT. My legs used to give way without warning leading to falls.
Hugs to you,
Love Debbie xComment
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Where you go I am sure to follow. Soft landings. 👍😉🤗♥️xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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A fall always knocks the confidence. Thinking of moving from a crutch type stick to a rollator myself. See what your OT says.Comment
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Hakuna sorry you had a fall...it's really such an awful experience!
I'm asking for a rollator...OT reassessment👍🏻😉😘Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Yesterday we had a fall. Trying to get into a cab. Car style taxi not so bad to get seated but the other kind a disaster. Have to say I don't find them easy when you have to duck down and climb in and turn and sit. So I should have known better. Stephen ducked to get in and just fell forward onto the space between kerb and vehicle. Disaster. I tried to catch him and ended up hurting myself again and he hurt his leg and face. Young taxi driver absolutely hopeless shouting at his colleagues that he couldn't have Stephen onboard as he couldn't get him onboard. Thank goodness these other two men came to our rescue.
Really lost my confidence in getting him out. 🙁when i can think of something profound i will update this.Comment
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Hakuna so sorry to read you had a fall. I feel your pain having had a fall myself only last week. My husband also had to pick me up off the floor.
If you're concerned about his back, you could ask your OT about a mobile hoist that can be used to get you up off the floor.Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.Comment
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Sorry to hear about your fall 🥺 I am off my feet now but the period leading up to that was quite scary as you want to try and stay mobile as long as possible despite your legs and your brain telling you otherwise.
I had quite a few falls and on one occasion even managed to get a nice imprint of our laminate flooring joints down my cheek.
When you speak to your OT it might be worth asking if there is a ‘camel’ going spare at Medequip (or whoever your local medical equipment supplier is), this is a four part inflatable cushion that will help you up if you fall again. I had one for about 18 months when I was in my wobbly phase and it helped me out quite a bit….. just an idea 👍
Take care,
JamesFoxes Never Quit 💙Comment
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Thank you James and Tabbycat. I’ll see what OT says tomorrow. I’m using frame now. I tried a rollator but my weak left hand meant I couldn’t brake.Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comesComment
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As a carer my husband's falls were so scary and once I discovered that I couldn't get him off the floor by myself.
We had to call the ambulance, they were lovely but it seemed really extreme.
He started using the comode to move from room to room, pushing with his feet.
I told him it wasn't worth a broken arm or leg.
But it is individual choice, his grip wasn't good enough for very long for a walking stick or rollator.
He still transfers with help from me, for balance although the OT has supplied a Mo Stand Aid.
We still use the comode/shower chair to transefer as more sturdy than the folding chair
The place is a bit small to use the power chair inside.
Best wishes
DonnaDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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I’m not feeling too good today. Quite shaky and weak. Is that the result of the fall I wonder? Bit depressed too. Hope it doesn’t last too long and I get my oomph back.Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comesComment
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😔😔😔
yes it could well be just a bit of shock from your fall……so rest up and you should be back fighting fit in no time 👍
Take care xFoxes Never Quit 💙Comment
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