Announcement

Collapse
No announcement yet.

Gratitude

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Gratitude

    A random shout out for my wonderful carers at Intrust Care who take the utmost care with me and for their upbeat humour and sensitivity at all times ❤️
    Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

    #2
    Rosemary6NT that's so good to know after your initial experience.

    I'm sure you have but the agency would love that in writing helps them evidence good practice when CQC inspect💙😉🤗
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

    Comment


      #3
      So happy for you Rosemary - yay for Intrust Care carers 👏👏👏

      Carers really can make or break our quality of life metrics 😘😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      Comment


        #4
        That's great Rosemary6NT . Im so glad you have carers in tune with your needs xx😘🤗

        Comment


          #5
          Rosemary6NT - fantastic news. They sound great and I'm so pleased for you. Carers are so important to us (well, I believe so, but as I can't actually find anyone yet I'm guessing 🤣)
          Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

          Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

          Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

          Comment


            #6
            Rosemary6NT that's great to hear. I'm so glad I have my carer now, I'm much less fatigued.
            Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

            Comment

            Working...
            X