Made a huge mistake today. My morning carer is only 19 but a lovely caring girl. But today i asked her if she could cut my nails. Wish I hadn’t!! She’d obviously never done it before. My toe nails are now ragged and one bled so it’s sore and my finger nails are so short, I can’t turn my kindle on. Note to self - never ask her to do it again. At least they’ll grow - they seem to do that easily. Silly me.
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Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes -
Hakuna How frustrating! I hope they grow back quickly so you can turn that kindle on.Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms. -
Hakuna - ouch! That does sound sore. Bit of a lesson for me too... I will think carefully about who I ask xDiagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.Comment
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I have had the very same thing. Lesson learnt.Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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My nails are filed (much safer) - takes a bit longer and you end up with shaped nails as a Brucie Bonus 👍👍Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ellie
Love a Brucie Bonus...that's a phrase used in our household too.Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.Comment
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Most care agencies don't 'allow' carers to cut nails...as Ellie said filing is safer. Hope they grow back soon xxInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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