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Moneys worth

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    Moneys worth

    I had to press my alarm last night after failing asleep on my sofa with a fan left on. My muscles had cooled down and I could not sit up! πŸ˜‚πŸ˜‰πŸ˜πŸ˜‹xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Hope you didn't take too long to thaw out and become pliable again πŸ€—πŸ˜˜
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      matthew55 Glad you had the alarm. You’d have had a long wait until your carers arrived.
      Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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        #4
        matthew55 great to know the alarm systems work!!! πŸ€—
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          1/2 hour and the responder put my electric blanket on and plugged it in. It wasn't the first time either. πŸ˜‰πŸ˜ŠπŸ˜β€οΈxx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

          Comment


            #6
            Originally posted by matthew55 View Post
            the responder put my electric blanket on and plugged it in.
            Aww, bless πŸ€—πŸ€—

            Originally posted by matthew55 View Post
            It wasn't the first time either.
            In that case.... what about a timer plug or, better still, once you're up and running on Grid3, you can turn sockets on and off with special plugs, all through your tablet πŸ‘πŸ‘πŸ˜˜
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #7
              Too much work for a slob like me. πŸ˜πŸ˜πŸ˜‹πŸ€©xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

              Comment


                #8
                Originally posted by matthew55 View Post
                Too much work for a slob like me.
                Hence the thread's title, I guess...
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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