Update

[matthew55]

I haven't been around much as my clumsy fingers make everything frustrating to say the least. I'm thinking about you just not interacting. Missing you. 😁😜🙄🤗xx

[denise]

I'm missing you. It's not the same without you. 😘🤗😘

[Hakuna]

I do have the same problems especially on my phone so I sympathise. On my phone I use the MNDA pen with the soft tip on the end. It’s a bit difficult to hold the pen but it’s fatter so I can do it. Just a thought. Praying for you and all of us.

[shelly21]

Miss you also. I guessed you were in training with your new device. X

[Aidan in Shrewsbury]

Have the same clumsy fingers problem which makes posting a pain.

[Nettie]

Same here hands have gotten much worse that’s the reason I don’t come on here much anymore 😢 x

[Ellie]

For anyone having difficulty accessing technology, please please please know that there are solutions available - ask your SLT or OT for a referral to an Assistive Technology service. 👍👍😘

[Nettie]

Ellie ive not heard off my SLT for over a year, thanks I’ll chase this up today 👍 xx

[Ellie]

matthew55 I thought that might be the issue, I'm sorry. It's your ability to communicate with your carers which would be of most concern, although you're missed here lots & lots.

You did say that you could get eye gaze so, if that's what you'd like to pursue, do get in touch with your AT contact. 🤗😘

[denise]

Stephen's hand are practically useless but they look poodgy and reddish. Anyone else the same? His feet and legs below the knee look similar. Spoke to community nurse yesterday but she wasnt sure so shes getting us down for a multi disciplinary. 🤔

[Heather R]

Miss not hearing from you so much Matthew, and do sympathise. My one finger typing on my iPhone is getting more hit and miss, thank goodness for predictive text. Xx

[Ellie]

Stephen's hand are practically useless but they look poodgy and reddish. Anyone else the same? His feet and legs below the knee look similar.

Obviously the nurse wasn't overly concerned about it - did she mention fluid retention? It's pretty common in limbs and joints which aren't exactly mobile or used much - my hands and knees would get like that if carers didn't do range of motion exercises. xx

[MMG]

Stephen's hand are practically useless but they look poodgy and reddish. Anyone else the same? His feet and legs below the knee look similar. Spoke to community nurse yesterday but she wasnt sure so shes getting us down for a multi disciplinary. 🤔

Hubby is the same, was referred to lymphodaema service, whilst waiting for that to come through, OT have shown us some massage techniques which help massively. His feet are also very cold due to poor circulation and the massage helps with this too. The oil also helps with dry skin so win win.

[DeeH]

denise

Thomas' feet get really red and his hands used to get swollen. It is the immobility. as long as when you press the skin it blanches white, then returns to normal. The circulation is functioning but it is still good to mention to the medical team.

[TinyLady]

matthew55 - you are missed but I do think if anyone understands how challenging posting can be then we do. Just good to hear from you when you do pop up 🙂