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    Fussy eater

    Hubby asked me what I would like for lunch. I could hear myself saying no I don’t like that or that. I can’t believe it I was never a fussy eater and enjoyed my food πŸ₯˜ now I’m fussy 😩

    #2
    Originally posted by Madge View Post
    ... now I’m fussy 😩
    Not fussy, Madge, discerning... πŸ˜‰πŸ˜

    I have my few favourite and very tasty dishes, i.e., worth the effort of eating, and tend to stick to them, with the odd variation.

    Mind you, I can afford to be discerning as I get most of my calories through the feeding tube. 😘
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      With MND I too have definitely gone off the thought of eating some things I previously enjoyed, strange x
      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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        #4
        I’ve managed to go off beer 🍺😒😒😒😒😒😒😒
        Foxes Never Quit πŸ’™

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          #5
          I seem to of lost my sweet toothπŸ˜’
          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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            #6
            Originally posted by LindaB View Post
            I seem to of lost my sweet toothπŸ˜’
            How strange ! Me too.. I used to love chocolate but now I seem to crave salty things. it's ironic that now I need the calories i don't want chocolate!πŸ€·β€β™€οΈπŸ«

            My appetite is small so I try to eat food I really enjoy . XxπŸ˜˜πŸ€—

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              #7
              My appetite has improved recently. I think the month in the hospice with so much food constantly appearing has helped. Plus all the nagging about how much weight I lost and how it was better to consider food as medicine.

              I think mostly it was permission to eat ice-cream as often as I like....it is easy to eat πŸ™‚
              Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

              Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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                #8
                Originally posted by Lcfcno1fan View Post
                I’ve managed to go off beer 🍺😒😒😒😒😒😒😒
                So has my husband and I am dry since January 2022

                Someone has to be sober to use the hoist
                Donna

                Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

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                  #9
                  Originally posted by DeeH View Post

                  So has my husband and I am dry since January 2022

                  Someone has to be sober to use the hoist
                  Lol yes…. although I’m the one in the hoist πŸ˜‚πŸ˜‚πŸ˜‚
                  Foxes Never Quit πŸ’™

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                    #10
                    I did wonder if it was just me but it seems a lot of you similarly effected by the food thing. Even though my appetite is still there and I have no trouble swallowing I’ve definitely become fussier. The effort of getting the food to my mouth means the reward has to be high for me to enjoy it. High calorie high taste food and definitely not anything that requires to much chewing. Glad to say I still enjoy a beer 🍺 but lots of things ( chocolate for one) definitely taste different and are less appealing. Cream cakes and donuts are good though πŸ˜‹

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                      #11
                      But I think chocolate tastes different anyway. It's just not the same. I thought it was my age but I really think they've changed the recipe.

                      Stephen's weight is stable at 12 1/2 stone, not sure what that is in the other stuff. So I'm supposed to keep him well fed, which is fine he will eat anything but on the other hand because of his ftd diagnosis hes not supposed to have lots of sweet stuff. Cant say hes that fussed but not sure why this is an issue unless of course some with ftd only want sweet stuff. I'm overloaded with information but not necessarily understanding why I need to be aware of things. It's all a big learning curve.

                      Have to say I've stopped Stephen drinking because I really don't think I'd be able to keep him upright so we basically share a can of Guinness now and again. Had a can the other day. I had a tray with 2 glasses and a can of Guinness. Stephen pushed the door shut as I was coming through. Can and glasses fell to the floor and the can exploded. It split along the seem and went everywhere. I was soaked, carpet,doors, wallpaper my glasses dripping. πŸ€”
                      when i can think of something profound i will update this.

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                        #12
                        Interesting thread. I’ve become a bit fussy too. I use way more salt than I used to, lost interest in wine, and binge eat certain things for a few weeks then move onto some else. Prawns one week, frankfurters the next!

                        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                          #13
                          Not so much fussy but I have lost the taste for certain foods and alcohol inc beer and wine sadly. I have moved to non-alcohol beer and even then I turn it into shandy with lemonade although problems with swallow means waiting until it becomes less fizzy.
                          Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

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