Hubby asked me what I would like for lunch. I could hear myself saying no I donโt like that or that. I canโt believe it I was never a fussy eater and enjoyed my food ๐ฅ now Iโm fussy ๐ฉ
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Originally posted by Madge View Post... now Iโm fussy ๐ฉ
I have my few favourite and very tasty dishes, i.e., worth the effort of eating, and tend to stick to them, with the odd variation.
Mind you, I can afford to be discerning as I get most of my calories through the feeding tube. ๐โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Originally posted by LindaB View PostI seem to of lost my sweet tooth๐
My appetite is small so I try to eat food I really enjoy . Xx๐๐ค
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My appetite has improved recently. I think the month in the hospice with so much food constantly appearing has helped. Plus all the nagging about how much weight I lost and how it was better to consider food as medicine.
I think mostly it was permission to eat ice-cream as often as I like....it is easy to eat ๐Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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I did wonder if it was just me but it seems a lot of you similarly effected by the food thing. Even though my appetite is still there and I have no trouble swallowing Iโve definitely become fussier. The effort of getting the food to my mouth means the reward has to be high for me to enjoy it. High calorie high taste food and definitely not anything that requires to much chewing. Glad to say I still enjoy a beer ๐บ but lots of things ( chocolate for one) definitely taste different and are less appealing. Cream cakes and donuts are good though ๐
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But I think chocolate tastes different anyway. It's just not the same. I thought it was my age but I really think they've changed the recipe.
Stephen's weight is stable at 12 1/2 stone, not sure what that is in the other stuff. So I'm supposed to keep him well fed, which is fine he will eat anything but on the other hand because of his ftd diagnosis hes not supposed to have lots of sweet stuff. Cant say hes that fussed but not sure why this is an issue unless of course some with ftd only want sweet stuff. I'm overloaded with information but not necessarily understanding why I need to be aware of things. It's all a big learning curve.
Have to say I've stopped Stephen drinking because I really don't think I'd be able to keep him upright so we basically share a can of Guinness now and again. Had a can the other day. I had a tray with 2 glasses and a can of Guinness. Stephen pushed the door shut as I was coming through. Can and glasses fell to the floor and the can exploded. It split along the seem and went everywhere. I was soaked, carpet,doors, wallpaper my glasses dripping. ๐คwhen i can think of something profound i will update this.
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Interesting thread. Iโve become a bit fussy too. I use way more salt than I used to, lost interest in wine, and binge eat certain things for a few weeks then move onto some else. Prawns one week, frankfurters the next!
Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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Not so much fussy but I have lost the taste for certain foods and alcohol inc beer and wine sadly. I have moved to non-alcohol beer and even then I turn it into shandy with lemonade although problems with swallow means waiting until it becomes less fizzy.Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.
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