I just wanted to say Thankyou to each and everyone who gave me advice with my mam I posted about a year ago she needed niv and feeding tube I showed her the messages of support and the links to videos that Elle sent and was coming round to having it feeding tube fitted unfortunately she was to far gone with breathing issues and passed away itβs took me a year to get the courage to post. Thankyou again xxx ruby
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Rubyray Thank you so much Ruby for taking the time to post, it means a lot to us all.
I'm so sorry that your beloved mam passed away - she obviously meant everything to you.
Grief is a long and difficult process and I hope you have good support from friends and family, and maybe a counsellor, to help you come to terms with your loss.
Love Ellie xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Rubyray you brave lady. Being a carer takes bravery, care and positivity. I hope you are coping. π₯°Diagnosed May 2021 bulbar onset als.Comment
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Hi rubyray
I send a kiss and a big hug.
ππ€πππ€when i can think of something profound i will update this.Comment
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Best wishes
Hugs and strengthDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Rubyray sending love & lightππ―Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Rubyray sending love and hugs xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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