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    #16
    Heather R yes today I couldn't try the new machine with the consultant in the room...she said it wasn't allowed because covid is airborne. πŸ™„

    shelly21 yes more relaxed to be at home. You're right the anxiety of travelling doesn't help breathing!πŸ˜‰

    ​​​​​​​Music man's wife Good point I need to check about battery for number two machine.πŸ€”

    ​​​​​​​Ellie I think I had the mask so tight that it made my nose sore...but I can't stand the 'farting' noisesπŸ˜‚

    β€‹β€‹β€‹β€‹β€‹β€‹β€‹πŸ’™πŸ’™πŸ’™πŸ’™
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #17
      Thanks
      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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