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    Prescription charges (UK)

    Does anyone know if it’s possible to get free prescriptions on NHS with MND diagnosis?? Their list of conditions mentions cancer but not MND
    Diagnosed 17/2/22
    summer 2020 - Left arm onset
    Jan 2022 - breathing now affected

    #2
    I’m not sure but they do have this as an exemption:
    • a continuing physical disability which means you cannot go out without the help of another person

    I wonder if anybody has qualified because of this clause?
    Foxes Never Quit πŸ’™

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      #3
      Chelle73

      Yes you do get free prescriptions with MND. Ask your GP for an Exemption Form, complete it and take it back to them. Tick the clause that James mentions as the reason. The GP will complete their bit and you get sent the Exemption Card within a week or so. You then show it on collecting prescriptions.

      It was the hospital pharmacy who told me I could get this.

      Diagnosed 3rd November 2021 Bulbar Onset

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        #4
        Yes I wasn't told about it either but found the clause the others mentioned. I think I asked gp to fill the form in.
        Diagnosed May 2021 bulbar onset als.

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          #5
          Yes, I did this form and GP signed it. Pretty straightforward. I think I found out from my GP that I was eligible. It took about 2 weeks for a small exemption card to arrive by post.
          Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

          Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

          Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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            #6
            I think it's unfair we have to hunt around for what we are entitled to. Stephen has been turned down for nappies because he isn't incontinent enough. I've stated that he cant use the conveen things, so you would think he would automatically be able to have an alternative, but no I've been given samples and I can get them cheaper but I'm annoyed we have to pay. She suggested a bottle for during the day but he cant use his hands. Talking to the conveen provider, they don't do nappies but shes giving me a monthly delivery of absorbent sheets and a disabled toilet key. Thing is, as she said, we should be offered these things. We should be advised of what is available. I've ended up buying nappies, absorbent sheets and gauze, creams and tape for Stephen's peg. We also contribute to social care. Hes 71 this year I think its very upsetting. I'm going to write to GP, OT and social worker. All I do is complain.

            My rant over for today πŸ™
            when i can think of something profound i will update this.

            Comment


              #7
              denise I am appalled by that decision. I agree re peg stuff. I had one visit by peg nurse and its rubbish. I purchase all my own gauze etc also. I also purchase the bottle tops so my partner can syring the liquid meds out. No one truly takes care of us and like you im learning that you have to complain which just leaves us exhausted and down.

              Big love x
              Diagnosed May 2021 bulbar onset als.

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                #8
                Funnily enough I haven't filled in any forms. All medicines free since diagnosis.πŸ€”
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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