Not posted much but life seems never dull with this disease. I am still mobile ( luckily) using a stick so we decided to visit York as my son is going to University there . Whilst here I had come with what l thought were the remnants of a bad cold. In short my throat got worse so decided to nip into walk in centre and ended up on a ward with IV antibiotics. Given new sticks as I declined a frame for now. Wife says we are not going away anymore as something always happens. Love and light to to all as we battle this despicable disease
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York visit bit of a disaster
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Derbyram21 hope youve now recovered 🙏😘Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.
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Shame your trip to York involved sampling the local hospital and I commend you for listening to your body and seeking help before the infection took over 👍👍
Originally posted by Derbyram21 View PostStill in here but should be going home today.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Derbyram21 oh what a diversion to your break. These colds cause us concern.
Hope you've escaped. But also on the recovery road xDiagnosed May 2021 bulbar onset als.
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