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York visit bit of a disaster

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    York visit bit of a disaster

    Not posted much but life seems never dull with this disease. I am still mobile ( luckily) using a stick so we decided to visit York as my son is going to University there . Whilst here I had come with what l thought were the remnants of a bad cold. In short my throat got worse so decided to nip into walk in centre and ended up on a ward with IV antibiotics. Given new sticks as I declined a frame for now. Wife says we are not going away anymore as something always happens. Love and light to to all as we battle this despicable disease

    #2
    Derbyram21 hope youve now recovered πŸ™πŸ˜˜
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #3
      Still in here but should be going home today. Thank you LindaB

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        #4
        Oh no! That's not good. Hope they let you home soon.
        😘
        when i can think of something profound i will update this.

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          #5
          Shame your trip to York involved sampling the local hospital and I commend you for listening to your body and seeking help before the infection took over πŸ‘πŸ‘

          Originally posted by Derbyram21 View Post
          Still in here but should be going home today.
          🀞🀞 that you'll be discharged today πŸ€—πŸ˜˜
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            Derbyram21 oh what a diversion to your break. These colds cause us concern.

            Hope you've escaped. But also on the recovery road x
            Diagnosed May 2021 bulbar onset als.

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              #7
              Derbyram21 oh what a shame. Hoping you feel better after IV antibiotics. Sending love to you.xx

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                #8
                Hi lovely people I am out and back home now. Thank you for your kind words . I do feel better have 9 days antibiotics to continue with sure that will sort it. I always read this forum ford advice and inspiration x

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                  #9
                  Originally posted by Derbyram21 View Post
                  Hi lovely people I am out and back home now. Thank you for your kind words . I do feel better have 9 days antibiotics to continue with sure that will sort it. I always read this forum ford advice and inspiration x
                  For lol auto text 😜

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                    #10
                    Glad you are home and comfortable. X
                    Diagnosed May 2021 bulbar onset als.

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                      #11
                      Glad you are on the mend, and out of hospital! X

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