Hello everyone,
My lovely mum (71 years old) was diagnosed with MND when she was admitted to hospital in February. Having had various tests and now a PEG tube fitted, the process has started to discharge her home. Her symptoms have been progressing over the last year but went undiagnosed. She is now bed bound, has no use of her right arm (though has feeling in it), breathlessness and is losing her voice. Thankfully her cognitive function remains and she is still sharp as a pin. Heartbreakingly, symptoms are progressing rapidly and she has been given months to live. Mum has now contracted Covid (positive test two days ago) and remains in hospital in isolation. I am not allowed to visit her because she’s got Covid. Her symptoms so far are a cough which is leading to choking episodes. She says that when she presses her call bell, it takes ages before someone comes to her, I am terrified the symptoms will progress and become much worse. Mum is vaccinated and has had her booster but I’m so scared she will have a choking episode and die. This is an horrific and cruel disease and I hate seeing her suffer but adding Covid to the mix is petrifying and I can’t even be there to comfort her. Does anyone have any positive stories of having MND in the advanced stage and getting through Covid please?
My lovely mum (71 years old) was diagnosed with MND when she was admitted to hospital in February. Having had various tests and now a PEG tube fitted, the process has started to discharge her home. Her symptoms have been progressing over the last year but went undiagnosed. She is now bed bound, has no use of her right arm (though has feeling in it), breathlessness and is losing her voice. Thankfully her cognitive function remains and she is still sharp as a pin. Heartbreakingly, symptoms are progressing rapidly and she has been given months to live. Mum has now contracted Covid (positive test two days ago) and remains in hospital in isolation. I am not allowed to visit her because she’s got Covid. Her symptoms so far are a cough which is leading to choking episodes. She says that when she presses her call bell, it takes ages before someone comes to her, I am terrified the symptoms will progress and become much worse. Mum is vaccinated and has had her booster but I’m so scared she will have a choking episode and die. This is an horrific and cruel disease and I hate seeing her suffer but adding Covid to the mix is petrifying and I can’t even be there to comfort her. Does anyone have any positive stories of having MND in the advanced stage and getting through Covid please?
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