Throat issues

[shelly21]

Excuse the weak way in my explanation but basically when a lay flat my throat muscles seem to close. Last night I realised if my mouth is closed and I'm horizontal then I can't breath down my nose.

A long shot but does anyone experience this?

my breathing is still very good etc and I'm not on niv.

thank you.

[Ellie]

Last night I realised if my mouth is closed and I'm horizontal then I can breath down my nose.

🤔 Am I missing something?? I would have thought that being able to breathe through the nose is a good thing, or is that what you're saying, and that this then relaxes your throat muscles? Sorry Shelly for being thick...

As for the initial issue, my throat/neck needs to be supported by a pillow and be straight/unbent, otherwise breathing is more difficult, even with NIV.

I wonder would more pillows help? Have you any problem with holding your head upright? xx

[shelly21]

Sorry I've edited can to can't.

I feel my head is supported just feels like muscles of my throat close.

C

[Hakuna]

I find lying on my back even with my head on pillows that saliva collects in the back of my throat and i choke. I too can’t breathe thro my nose so i have to lie on my side. I think it may be that the soft palate is affected as part of the bulbar palsy. But I’m no expert.

[shelly21]

I did think the same re soft palate. I also try sleeping on my side. X

[aussiegirl]

I experience this too. I find sleeping with my bed or chair raised so I am not horizontal helps.

[shelly21]

Thank you. I presume its my muscle weakness as my speech and swallow have declined. I find lying on my side it doesn't happen.

[Tony]

You might find sleeping in a semi reclined position helps. I’ve just taken delivery of a Magnar Handy Pillow Lifter from Social Services. Might be worth asking your OT or physio about. Link attached

https://mangarhealth.com/uk/store/pr...dy-pillowlift/

[Piglet]

Tony thats a good bit of equipment probably cheaper than a hospital bed and more attractive! Hope it’s useful for you x