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    #16
    Thanks everyone for your support, only just on Tuesday got the bad news off the consultant, I don’t even know what type of mnd I have yet . Waiting for another appointment to see a specialist team then hopefully I will know more, iam only now in the process of telling my family. I don’t want pity I just want everything to be as normal as possible for now. I first noticed something was wrong when my foot started to slap on the floor that was over a year ago, nothing much else has happened only muscle fluctuations.As for work I don’t know it’s the financial side that worries me iam not a millionaire I work from pay packet to pay packet.

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      #17
      Gumshied12 Its a mega shock. Telling family is also very hard. We understand re the financial burden.

      these next few months will be busy. There are lots of medical departments involved in our care.

      A good occupational therapist is great plus your mnd nurse.

      Re money all I can say is try dealing with the shock and talking to family first.
      Diagnosed May 2021 bulbar onset als.

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        #18
        Originally posted by Gumshied12 View Post
        ... I first noticed something was wrong when my foot started to slap on the floor that was over a year ago, nothing much else has happened ...
        Relatively speaking, that's a very good sign.

        If you have life insurance, mortgage protection, critical illness insurance etc, check if you can get a payment. xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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