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    Good night

    Simply leaving the fan on all night pointing away
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    #2
    What? What you on about? 🤔
    when i can think of something profound i will update this.

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      #3
      Think Matthew means a cool nights sleep.
      Diagnosed May 2021 bulbar onset als.

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        #4
        Think he must be still asleep. It's only may what will he be like in summer?!
        when i can think of something profound i will update this.

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          #5
          Actually its still April 😂
          Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes

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            #6
            🤣😂🤣 welcome to my world. Apparently one of the test questions for dementia is being asked the date. Got the day wrong, month wrong, but what about the year? 🤔😂
            when i can think of something profound i will update this.

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