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Blimey

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    Blimey

    At silly o'clock two coppers walked in. My alarm company was worried and called them!
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

    #2
    What on earth have you been up to? ๐Ÿคฃ
    Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

    Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

    Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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      #3
      Iโ€™d like to second TinyLadyโ€™s question. What are you getting up to that worries your alarm company? ๐Ÿ˜ฑ
      Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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        #4
        They came to help me
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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          #5
          Its encouraging that they care. Hope youโ€™re OK.
          Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes

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            #6
            Did they smash the door in like on TV programmes?
            Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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              #7
              No they were very nice
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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                #8
                Originally posted by matthew55 View Post
                No they were very nice
                ๐Ÿ‘๐Ÿ˜€ Sounds like you had a great service; peace of mind and useful to know in case there ever were to be an emergency
                Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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                  #9
                  matthew55 youโ€™re leaving a lovely trail of breadcrumbs to what is obviously a good story, but Iโ€™ve read the fairytales so Iโ€™m staying safely here on the sidelines. Iโ€™m sure someone else will go inside your head looking for the details. ๐Ÿ˜‚๐Ÿคฃ

                  Iโ€™m glad your door survived unscathed.
                  Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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