At silly o'clock two coppers walked in. My alarm company was worried and called them!
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xx -
What on earth have you been up to? ๐คฃDiagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined. -
Iโd like to second TinyLadyโs question. What are you getting up to that worries your alarm company? ๐ฑDiagnosed December 2020 with lower limb onset ALS, now involving hands and arms.Comment
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They came to help meBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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Its encouraging that they care. Hope youโre OK.Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comesComment
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Did they smash the door in like on TV programmes?Diagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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No they were very niceBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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๐๐ Sounds like you had a great service; peace of mind and useful to know in case there ever were to be an emergencyOriginally posted by matthew55 View PostDiagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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matthew55 youโre leaving a lovely trail of breadcrumbs to what is obviously a good story, but Iโve read the fairytales so Iโm staying safely here on the sidelines. Iโm sure someone else will go inside your head looking for the details. ๐๐คฃ
Iโm glad your door survived unscathed.Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.Comment
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