I heard back from wheelchair services today after a lot of chasing by both myself and MNDA - my new power chair is being ordered today and I have been assessed as having a higher care need so will get a chair that can be added to. I know it hasn’t been so long as perhaps others have had to wait but, my left leg has pretty much given up on me and it’s getting harder every day to get around with crutches or a walking frame. I am no5 sure how long I will have to wait now but I feel like I have got over a huge hurdle today 😀
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That's good news Karen, hope delivery won't take long 🤞🤞
Just a note to potential wheelchair users: the MNDA has done great work in ensuring people with an MND get a higher spec 'neuro chair' as standard, or at least should get such a chair.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Karen62 that is great news, I'm very pleased for you 😀. It is such a relief when these things finally start to fall into place.
I had my assessment for a powered wheelchair 2 weeks ago today, they were very non-committal as to how long it might take!Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.
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Originally posted by Ellie View PostThat's good news Karen, hope delivery won't take long 🤞🤞
Just a note to potential wheelchair users: the MNDA has done great work in ensuring people with an MND get a higher spec 'neuro chair' as standard, or at least should get such a chair.
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Karen62 - it seems to vary enourmously, but whilst my care has not been great or timely in many areas, wheelchair services were really quick and efficient. It certainly helped that my hubby regularly encouraged them to keep chasing and sorting it.
I got mine promptly and has been invaluable since. Needed a few tweaks as I fell down the back of the cushion 🤣. Took about 3 weeks from assessment. They said they had the perfect one ready.Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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Originally posted by Lcfcno1fan View PostGreat news Karen 👍
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