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A good weekend

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    A good weekend

    I have always been someone who is always on the go and sewing has been a huge part of my life - I make my own clothes and made both my daughters wedding dresses. After my diagnosis, I was worried I would lose the ability to do this and I am well aware that at some point I will. However, this weekend I have managed to make 4 dresses for my granddaughters and turned up three dresses for my daughter in law. So feeling really pleased with myself.

    Added to that we are in the final stages of renovating our house which we bought last September. I have always been fully involved doing plastering, tiling and decorating. We have had to strip all of the woodwork in the house and the hall has been the worst to do. My hubby and son have done a lot of the work but today I decided that I was doing the skirting boards. It took twice as long as normal but I did it and now they are all ready to paint before the new carpet is fitted on Friday.

    sorry for the rambling post but I am so proud of myself and whilst there have been challenges (getting up off the floor was fun🙈) I did a weekend of almost normal. MND might win the war but this weekend I won the battle 😂

    #2
    Karen62 Way to go! It’s great that you were able to do those dresses. I’m also impressed that you did the skirting boards. I haven’t voluntarily seen the floor in over a year now.

    Every battle that you can win is a good one!
    Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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      #3
      Karen62 Go girl!! 💪 xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #4
        Well done Karen. Xx
        Diagnosed May 2021 bulbar onset als.

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          #5
          Karen62 - what a lovely post!! Made me smile this morning x
          Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

          Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

          Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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            #6
            Well done Karen62
            A triumph in the face of adversity. Stay positive!
            Hi, I'm Eddie.
            Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
            Still walking and talking, and wondering what the future will bring.

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              #7
              Impressive, Well done you 👋

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                #8
                Karen62 What an achievement! Savour it xx
                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                  #9
                  I'm impressed. Well done you.

                  😘
                  when i can think of something profound i will update this.

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                    #10
                    Well done Karen62. You should feel proud.

                    Im also mega impressed you made your daughter's wedding dresses..with or without MND. Wow ! Xxx

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                      #11
                      Well done, what an achievement. I wish I could still sew

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                        #12
                        Thank you everybody, it was fun and maybe just what I needed after a tough few days last week

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                          #13
                          Well done Karen62 I have tried to do this....the things that I consider normal life, one way or another, keep trying to do them. 😊

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                            #14
                            Originally posted by Deb View Post
                            Well done Karen62. You should feel proud.

                            Im also mega impressed you made your daughter's wedding dresses..with or without MND. Wow ! Xxx
                            Thank you Deb, I think my proudest moments was seeing their faces when I first showed them the finished dresses. There were lots of happy tears and they both looked so beautiful on their wedding days.

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