Hi Everyone,
I seem to be 'queen of asking questions' all the time, so apologies for another one!
Many of you know it's my Grandma that has ALS. At the moment, she has lost most of the strength in her legs so can only shuffle a few paces with her walker. Her speech is quite slurred and she's gradually getting weaker in the throat so eating is starting to become a problem.
At present, her care package, under continuing healthcare, consists of 4 carers per day. The morning carer is scheduled in for 45 minutes, with the remaining 3 calls standing at 30 minutes each. This just about covers getting up/dressed/washed, having breakfast, having lunch, having dinner and then getting undressed/put into bed for the night.
9 times out of 10, the washing up isn't done, there's no time for the carers to wash Gran's hair (plus she generally moans that the carers 'don't do it properly' on the two/three occasions when she let them do it, but that's another story!)- literally nothing else gets done around the house and it also seems to be the case that the gaps between the calls can be so widespread that my Gran often is bursting for the loo for a long time before the carer or myself turn up.
I work full-time, so I cannot be there throughout the daytime. I was just wondering if anyone agrees with me that the care package should be increased to full-day care at home? I'm new to this continuing healthcare thing, so I don't really know whether it's something that can be changed before the 3 month review period. Any input/experience would be greatly appreciated.
I seem to be 'queen of asking questions' all the time, so apologies for another one!
Many of you know it's my Grandma that has ALS. At the moment, she has lost most of the strength in her legs so can only shuffle a few paces with her walker. Her speech is quite slurred and she's gradually getting weaker in the throat so eating is starting to become a problem.
At present, her care package, under continuing healthcare, consists of 4 carers per day. The morning carer is scheduled in for 45 minutes, with the remaining 3 calls standing at 30 minutes each. This just about covers getting up/dressed/washed, having breakfast, having lunch, having dinner and then getting undressed/put into bed for the night.
9 times out of 10, the washing up isn't done, there's no time for the carers to wash Gran's hair (plus she generally moans that the carers 'don't do it properly' on the two/three occasions when she let them do it, but that's another story!)- literally nothing else gets done around the house and it also seems to be the case that the gaps between the calls can be so widespread that my Gran often is bursting for the loo for a long time before the carer or myself turn up.
I work full-time, so I cannot be there throughout the daytime. I was just wondering if anyone agrees with me that the care package should be increased to full-day care at home? I'm new to this continuing healthcare thing, so I don't really know whether it's something that can be changed before the 3 month review period. Any input/experience would be greatly appreciated.
. I think that you'd best ring MNDA helpline for advice. They know the system, how MND effects people and can point you in the right direction. The telephone number ought to be somewhere on this site, or Google it. But I bet somebody will post the number before you have the time to look. Ask however many questions you want. It's no problem at all. That's what we all come to the forum for: to ask questions; offer advice and/ or suggestions, and be a there for giving and receiving emotional support. You are a star, caring for your gran whilst still doing a full time job, Lynne x
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